03-31-'05 Jessica Update

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May 18, 1999
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In the paradigm that Uncle Bill would want us too continue on as we always have I thought this too be proper since so many have asked.
I finally couldn't take it anymore so I wrote my "Baby Girl" a short note asking, "Okay, What's going on down there?" I guess Stella sensed where I was coming from and knew what would be coming next.
Pretty much as written.


Hi Daddy

I am sorry I wish I had good news been waiting till I got some... Jessica is in trouble again her Potassium (2.6 should be around 3.5) and Magnesium is very low and it is causing a lot of problems...

She is dizzy even sitting down and now she has headaches every day and the worst is that she is having heart arrhythmia her heart is skipping beats because of the low potassium and mag…They have given her extra but it isnt changing the numbers....

She is due for a blood draw tomorrow and she has been having them every couple of days they take it and take it directly to the hospital...

She saw her GI doc today and they think her nutrition is off and they say they have the formula down right but she is losing her hair like she is on Chemo it is falling out in clumps... She is STILL throwing up and we are giving her Zofran (anti-nausea medicine) straight and she still throws up and is eating very little... and drinking very little...

They think the abcess is back and she will see her surgeon tomorrow she will order another cat scan and we will go from there I am sure...She has already said if it came back that she would go in and drain it...

I just don't understand why this is taking so long to heal...
I am very tired she needs round the clock care and I can only give so much and work too...Dallas has been great doing most of it during the early morn so I can sleep...His knee is healing I just wish it would hurry up...

I feel so run down and I try to see the light at the end of the tunnel but it is very dim at the moment...
I love her sooooo much that this is killing me no matter what we do it seems she doesn't get better but her spirits are better her being at home so I felt like I did right in that respect at least...

Sorry this is so long but guess I needed to vent and you DID ask... I will get her better if it is the last thing I do she has to get there sooner or later...

(Edit)
and I am sorry I haven't written I have been sleeping a lot and just not been on the computer much...


Have an eye Dr. appt tomorrow seems I cant see much close anymore all blurry... says I need bifocals… I don't want them but I need to see so guess I will have to go with them...
Getting the progressive ones hate the ones with lines give me headaches...

I miss reading, only way I could escape but unless it is large print I can’t read it... He says I also have the start of cataracts. I think I will just fall apart slowly but surely so someone can find my parts and put them back together...

Well I am off to bed I am tired and have a big day with doctors tomorrow...

Love BG
 
yvsa my friend--i hope the little one gets better soon--more prayers coming your way and hers
 
I was just going to ask about the little one then I saw this post. I really wish there was something to be done besides prayers and good thoughts. :grumpy:

Still ...prayers and positive thought have their own power and affect. :)
 
No child should have to endure so much. :( Prayers and smoke continue from NC.

Steve
 
Prayers for Jessica and Stella both. I hate it when bad things happen to good people. Especially children.

Ice
 
I'm very sorry for your family!

Prayers and good wishes is all I can offer.
 
shappa said:
I was just going to ask about the little one then I saw this post. I really wish there was something to be done besides prayers and good thoughts. :grumpy:

Still ...prayers and positive thought have their own power and affect. :)

Me too, Yvsa, Adversity and pain are very hard and often incomprehensible things. And often seem so wrong and unnecessary. Especially when it involves the young.

I try to tell myself that there is a reason somewhere, but it is just beyond my understanding.

God never works on one person at a time.

We are pulling for you and yours. We are all in this together. Surely THAT is one of the reasons we are here together.
 
I wish the news was better, Yvsa:( Smoke and prayers going up from Indiana for you and your family.

Jake
 
That is so sad. I hope they can find some relief soon. I guess it is good that Jessica's spirits are higher at home. I hope she won't have any more extended stays in the hospital. Stella sounds a little worn too and she is also sick.

Sounds like Stella and Dallas could use some good old fashioned personal hospice, that they didn't have to pay for, to help out. I hope something can be done soon. I hope she will be able to get more help. :(
 
Will send some smoke tonight for the whole family, Yvsa.

Best of luck to everyone.

~ B
 
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