Avascular Necrosis (Osteonecrosis) - Anyone have it?

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Jun 28, 2010
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Has anyone hear ever had to go deal with this condition?

About 2 months ago I underwent a CT scan of my pelvis. Fortunately, what was being looked for was not present. Unfortunately (but fortunately for detection), something else was possibly found. I was given a copy of the images and a report from the specialist as reported by the radiologist (I believe it was). In a nutshell it mentioned 25-50 percent AVN (Avascular Necrosis) in both hips.

I went back to my PCP who sent me for an MRI to confirm. Today the results confirmed Stage II AVN of the hips. I read that knees and shoulders can be affected. At this time I have knee, leg, and groin pain. Some days I feel okay, others I feel a steady and sometimes increasing internal pain that no medicated cream has been able to lessen. On the days that it hurts something bad I have a hard time walking normal. It keeps me up really late some nights. If I go bike riding I feel pain and pressure in my knees and hips. Swimming is the only thing that I have found to lessen the pain.

The next step is a referral to an Orthopedic Surgeon - I should hopefully receive a call back with the referral. By the time they took me it was late in the day today so it was not ready by the time I left.

I'm fairly young - 34 - and fall into the age range with a greater likelihood of occurrence. It looks like this may be a possible result of a great amount of steroids that I have had to take in numerous medications to treat my severe asthma since the end of December 2013 to present.

From what I gather hip and knee replacement may be inevitable, but certain things can be done for pain management before reaching stage IV. Just looking for somebody that has been through the process and can offer first hand experience or knowledge.
 
FWIW - I am an orthopedic surgeon who specializes in joint replacement, so I have (unfortunately) a lot of familiarity with AVN.
Realizing that Internet discussions are NOT a substitute for in person evaluation, I am willing to answer questions for you if that is helpful. I've done that in the past for members here and I think it has been helpful.

You may be more comfortable doing this by email or PM and I'm fine with that too.

just let me know

Bill Flynn
 
Good luck with your treatment. I hope you can heal up from this.

I had a hip joint replaced in 2012, and it was a breeze, especially since I took the physical therapy seriously.
 
My hip replacement wasn't a breeze, but it was not awful either. If that is the surgeon's recommendation don't be afraid to do it. You are young, but the pain relief is worth it.
 
That sucks. Had a friend that got his hip replaced at 31 due to severe AVN. Bad news was that he had to give up softball, which he loves. Good news is he's almost completely without pain now.
 
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