Living with a (partially) paralyzed arm

Joined
Oct 10, 2007
Messages
280
I'm only active on this forum for a relatively short time, and it feels like a strange thing to post this on a knife forum, but for some reason I feel like doing this.

I don't think I've said this before on this forum, so I will give you guys a short introduction to what has happened to me.

I've had a bike accident in December, and went on surgery a week later. Since then, I cant use my right shoulder, and with it I've lost the use of pretty much my whole right arm for normal activities.
After the operations, doctors told me I would regain the full use of my right shoulder in about 6 months.

But last Friday, I got some pretty bad news. They discovered that an important nerve in my shoulder(for the ones who know it, it's the "axillary nerve", controlling the Deltoid and Teres minor muscles) isn't working, and heavy damaged by the operation. I already knew the operation didn't go as planned and went to a different doctor after I realized that, but didn't know it went that bad. They said the chances of healing up are very small, and there is a big chance I will never be able to use my right shoulder again like it should.
There is a small chance the nerve is squeezed by the bad operation, and only in that case there would be a chance of fixing it with an operation. Tomorrow I will have a special scan of my shoulder that will be able to tell if that's the case. Although they said the chance isn't big, I am telling myself that this is the case, and that there is still hope. But I have big problems waiting for the scan and its results, and feel really bad by it. I'm afraid of bad news, but am hoping it will turn out good in the same time. I never felt "depressed" before, but the uncertainty feels very bad, and I don't function normally these past days.

I used to do lots of sports(bouldering, rock climbing, biking, ...) before, but now the only sport I can still do is running(and I find that boring). Even typing this on my computer hurts my shoulder, but in the last half year I've learned to live with it, with the thought it would only be temporary. I will probably loose this year at hight school because I'm not able to work for my exams as I could in the previous years.
It also gives me other problems like not being able to control the gearbox of the car properly, not being able to carry things with two hands, ...
I even got afraid of heights, something that I never experienced before. When standing next to a depth, I know that I won't be able to stop myself from falling with one arm. I was also confident in myself before, and knew that I would be able to defend myself pretty well if someone would attack me, but now I feel very vulnerable when walking alone in some streets at night. It's not a nice feeling, and I'm glad it's not easy to see that I can't use my right arm if you don't know it.
Although that also gives unpleasant situations, like for example when I'm not able to hold the door open for someone else when carrying something in my left hand, and people think I do this because I'm rude or something.
And since I'm right-handed, there are many other things I've got troubles with.(writing for example) I'm only 21 years old, and feel like this is too young to get handicapped for the rest of my life.
My arm is also in constant pain, and I haven't found any medications yet sufficient to take it away.(the pain isn't as important to me as the lack of usability of my arm)

I'm not the kind of person that talks a lot about his feelings, but doing this on this forum goes a bit easier(even while not in my mother language). I'm not writing this to ask for your sympathy here(would appreciate it though), but would like to know if other people have dealt with a similar situation before. And would like to hear any tips you got of handling this. And maybe how to wait for the results tomorrow. I'm afraid I wont get much sleep this night.

I want to know if people succeeded in training their left hand to do the same thing as their right hand could(or the other way around if you were left handed of course),
and if you know a fun sport that can be done with the use of only one arm, I would love to hear that.
I run these days to keep me into shape, but I don't really like doing that. And biking hurts a lot on my shoulder(it 'shocks' too much, and I have to keep my arm in the same position for a long time). I'm also not good with foot-ball sports(soccer and the like).

Thanks for taking the time reading this. As this is quite a big forum, I hope there are people here that can share some experience in situations like this.
 
I'm very sorry to hear about your injury and resulting disability. Depending on the nature of the injury, there may still be hope for some recovery by an axillary nerve graft. Some patients have regained significant sensation and mobility. I would get opinions from a couple of neurosurgeons on whether you might benefit from this type of treatment. Best of luck - I hope it works out OK for you.
 
In a case like this, you can never go wrong by getting a second opinion, or even a third. Get them form specialists in different fields. Neurosurgert is fine, but make sure that you are also checked out by a competent neruologist specializing in the peripheral nervous system.

Do not reconcile yourself to using only one arm based on the opinion of only one doctor. Different doctors have different experiences, and you may be able to find one that will help.
 
I'm very sorry to hear about your injury and resulting disability. Depending on the nature of the injury, there may still be hope for some recovery by an axillary nerve graft. Some patients have regained significant sensation and mobility. I would get opinions from a couple of neurosurgeons on whether you might benefit from this type of treatment. Best of luck - I hope it works out OK for you.

Thanks. I didn't know a nerve graft could be possible when the nerve is totally damaged. The neurologist told me it was probably not possible in my situation to fix it, but I will ask it tomorrow(another neurologist).
Does the person that does this kind of operation have to be very good/skilled, or can I let this be done by most surgeons that say they can handle it? Since my last operation turned out so bad, I'm a bit hesitant to undergo another operation without much research about the abilities of the surgeon that will be doing it.
You have given me some more hope on a recovery, many thanks!
 
In a case like this, you can never go wrong by getting a second opinion, or even a third. Get them form specialists in different fields. Neurosurgert is fine, but make sure that you are also checked out by a competent neruologist specializing in the peripheral nervous system.

Do not reconcile yourself to using only one arm based on the opinion of only one doctor. Different doctors have different experiences, and you may be able to find one that will help.

Thanks for your advice.
I've got an appointment by another reputable specialist in a month to get a second opinion. It's a shame that it takes so long to get an appointment with a good doctor, and I am actually lucky that I can get with this one so early, as the normal waiting period is around 5 months I've heard.
 
Thanks. I didn't know a nerve graft could be possible when the nerve is totally damaged. The neurologist told me it was probably not possible in my situation to fix it, but I will ask it tomorrow(another neurologist).
Does the person that does this kind of operation have to be very good/skilled, or can I let this be done by most surgeons that say they can handle it? Since my last operation turned out so bad, I'm a bit hesitant to undergo another operation without much research about the abilities of the surgeon that will be doing it.
You have given me some more hope on a recovery, many thanks!

It is always best to use a surgeon with experience in the operation that he will be performing. that being said, every surgery is different. Yours certainly will be, since you have already had one surgery there. In any event, even the most experienced surgeon can have an unsuccessful operation, through no fault of his/her own--and there is always the possibility of human error.


Do not let this discourage you. A good surgeon will tell you the (very approximate) chances of success, and you can make your decision. The best of luck to you, and keep us posted.
 
It is always best to use a surgeon with experience in the operation that he will be performing. that being said, every surgery is different. Yours certainly will be, since you have already had one surgery there. In any event, even the most experienced surgeon can have an unsuccessful operation, through no fault of his/her own--and there is always the possibility of human error.


Do not let this discourage you. A good surgeon will tell you the (very approximate) chances of success, and you can make your decision. The best of luck to you, and keep us posted.

Thanks. I will keep you posted.
 
Although not quite the same, I have a similar situation. A few years ago I was hurt pretty bad in a training exercise w/ the Army. The result was a fused right wrist. Like you, I lost out on a lot of things I used to enjoy. Pretty much all my hobbies are limited/no longer possible to one extent or another (shooting, motorcycles, competative fighting etc.) I live with a bunch of pain and sometimes I'm very bitter about the whole deal as it was pretty much the end of me being in the Army. I'm young (compared to some of the older than dirt guys here haha) and for a long time didn't think it was fair that I lose out on all these great things. Booze/pain med. abuse (still working on those) and a crappy attitude doesn't help either.
While I was doing physical therapy a kid came in and we got to talking one day. 19 years old, and less than 1 year in his unit, he got tagged by a VBIED. It busted up his whole right side- broke most everything from should to foot. He'll never be 100% again and has this to deal with for the rest of his life. His two buddies in the truck did not live. When I told him that I understood the hurt he was dealing with he told me "Ya know what? Evey day that you wake up upright and breathing is a good f*cking day" Kind of put it all in perspective for me. I'm still bitter and I still have a lot of therapy that needs done but I'm working towards enjoying life again. I've modified my training, learned to shoot again and can ride scoots if I take it easy. My life isn't over- just changed. Sorry for the long winded post.....this is a close topic for me. Best of luck and keep your head up.
 
What was the initial operation? What did they do? How was the axillary nerve injured? Was it transsected during the operation?

Have they done any EMG studies? (Nerve conduction studies)


Paul
 
Sorry to hear about your problems, Buckabee. I know where you're coming from. I have bone necrosis in both my knees (and hence more or less constant pain), have had it for years. It's meant giving up a lot of things I loved: running, hiking, most sports.

It sucks, but you really can't dwell on it. Try to find something you enjoy and pursue it to the best of your abilities.

Good luck.
 
Although not quite the same, I have a similar situation. A few years ago I was hurt pretty bad in a training exercise w/ the Army. The result was a fused right wrist. Like you, I lost out on a lot of things I used to enjoy. Pretty much all my hobbies are limited/no longer possible to one extent or another (shooting, motorcycles, competative fighting etc.) I live with a bunch of pain and sometimes I'm very bitter about the whole deal as it was pretty much the end of me being in the Army. I'm young (compared to some of the older than dirt guys here haha) and for a long time didn't think it was fair that I lose out on all these great things. Booze/pain med. abuse (still working on those) and a crappy attitude doesn't help either.
While I was doing physical therapy a kid came in and we got to talking one day. 19 years old, and less than 1 year in his unit, he got tagged by a VBIED. It busted up his whole right side- broke most everything from should to foot. He'll never be 100% again and has this to deal with for the rest of his life. His two buddies in the truck did not live. When I told him that I understood the hurt he was dealing with he told me "Ya know what? Evey day that you wake up upright and breathing is a good f*cking day" Kind of put it all in perspective for me. I'm still bitter and I still have a lot of therapy that needs done but I'm working towards enjoying life again. I've modified my training, learned to shoot again and can ride scoots if I take it easy. My life isn't over- just changed. Sorry for the long winded post.....this is a close topic for me. Best of luck and keep your head up.

Thanks. I do realize there are worse things that could have happened to me. Due circumstances, I know quite a lot of people that had serious accidents. I know a girl that got her skin 90% burned after a fire in her house when she was 8, and has to wear some sort of mask now. A friend fell of a roof and had serious brain damage when he was 18, and lost his ability to speak. After a year he was able to speak again, but very difficultly. The problem is that because he speaks like that, people think he is retarded, and treat them like that, while he still can think normally. Because he can't tell what he wants to say, it is very difficult for him to prove people otherwise. At my own shame, I even caught myself on doing that sometimes. He also lost the the ability to walk for a big part. It must be a terrible thing to grow up with. And I now some other people that had tragic things happen to them. So I know there are always worse situations, and I try to keep seeing the best in what happens.
But I must admit I get a bit bitter about this at the moment anyhow. Thanks again for telling your story and I wish you Good Luck too m1marty.


What was the initial operation? What did they do? How was the axillary nerve injured? Was it transsected during the operation?

Have they done any EMG studies? (Nerve conduction studies)


Paul

The initial operation was on the musculus supraspinatus. But the doctor started for the wrong operation(he wanted to make a biceps anchor) and only after making a whole in the bone for the anchor, he realized there was nothing wrong with my biceps.
So he repaired the supraspinatus(a big tear in the tendon) from there, resulting in a very big scar.
I did realize he did something wrong, but thought it would all heal after that. The surgeon just send me away without answering my questions(told me BS like he didn't tell it because I wouldn't understand what he was saying since I didn't follow medical schooling and stuff). As soon as I felt something wasn't right I went to another docter, that pretty fast saw that the operation was done wrongly. But because the supraspinatus was healing, it looked like he didn't do anything other wrong than giving me a huge scar(almost 3") and making a painful hole in my shoulder bone... I knew I could do less with my shoulder after the operation, but thought it would heal up.

I don't know exactly how the axillary nerve was damaged during the operation, but the Electro-Mio-Gram of last Friday showed that the axillary nerve stopped working right at my shoulder, and almost no signals could get passed that point. Tomorrow I will have a "botscan"(don't know how this is called in english, thanks to google I think its "bone scintigraphy", I don't really know how it works, as it is a scan to see the nerve damage and not the bones as the name suggests to me) The results should show on what way it is damaged and if repair is still possible.
 
Sorry to hear about your problems, Buckabee. I know where you're coming from. I have bone necrosis in both my knees (and hence more or less constant pain), have had it for years. It's meant giving up a lot of things I loved: running, hiking, most sports.

It sucks, but you really can't dwell on it. Try to find something you enjoy and pursue it to the best of your abilities.

Good luck.

Thanks. I hope to find another hobby I enjoy in the near future. I am trying to train my left arm to get it to function like my dominant arm, to be able to do use it in all sort of recreative activities(like throwing a ball)
Without my injury, I don't think I would be this active on this forum as I am now. Knives are something were I luckily don't really need both arms for.:)
I'm also still spending lots of time at scouting and although I'm not able to participate in all activities, I still enjoy organizing them.

Thanks for the advise, I will try to keep myself from dwelling on it.
I'm accepting(or at least trying very hard;)) that although I planned/dreamed on competing in bigger competitions before my accident, I will probable never be able to do any bouldering again.
 
I have 2 friends,both who lost partial use of their right arm as teenagers in motorcycle accidents,that was back in the seventies.Neither of them ever left their injuries put a damper on their lives,they couldn't do everything that they did before,they both learned to use the opposite hand for what they needed.These were guys that were into rodeo,motorcycles,hunting,cars,they didn't climb mountains but they still found ways to enjoy some of the things they loved to do and found new things also.Both are in their 50s,both are self employed,one details cars the other is a logger,they've never left their injury get the best of them and both of them are still characters.Hopefully for you,they'll find something that can fix what was damaged,but if they don't,it won't be the end of the world,it just won't be quite the same world.
 
I have 2 friends,both who lost partial use of their right arm as teenagers in motorcycle accidents,that was back in the seventies.Neither of them ever left their injuries put a damper on their lives,they couldn't do everything that they did before,they both learned to use the opposite hand for what they needed.These were guys that were into rodeo,motorcycles,hunting,cars,they didn't climb mountains but they still found ways to enjoy some of the things they loved to do and found new things also.Both are in their 50s,both are self employed,one details cars the other is a logger,they've never left their injury get the best of them and both of them are still characters.Hopefully for you,they'll find something that can fix what was damaged,but if they don't,it won't be the end of the world,it just won't be quite the same world.

You're certainly right. I think it's mostly the uncertainty that made me feel so bad. Venting here and reading your opinions helped. I'm going to sleep now, and will see what tomorrow brings.
 
I promised to keep you posted. So here is the news so far:

They're still not sure how the nerve was damaged, but they think it was either overstretched a lot too much during the operation, or they think the nerve was damaged by a syringe when they tried to anaesthetize.
Either way, there appears to be a small part of the signal that gets through with some delay(not sure, as they haven't received all detailed results from the emg for some reason) So they say the nerve may heal partially over time, but it can take a lot of time. And operation is too dangerous as it can make the situation worse, and microsurgery isn't a totally mature surgery branch, certainly not regarding the shoulder.
Because of the nerve damage, there is some sort of complication(don't remember the exact complicated name) and to try to heal it, I will have to take injections several times a week for at least some months.
They've also given me medication, and I will have to do lots of physiotherapy several times a day(already had to do that), and will be given some sort of electrostimulation therapy.

So there is still chance of a recovery, but the doctor didn't want to promise anything, or say how big the chances were, only that time would tell. When I asked(and asked again) what his most optimistic guess would be, he said a partial recovery and return of power in a little less than a year.

I still have an appointment with another doctor next week, to hear a third opinion, but unless he will say something totally else, I won't be updating this thread. I will try to occupy myself with totally other things than thinking about it. (like working for my exams that are coming in less than a week, or nicer thinks like trying out my nice Kershaw Nakama that arrived today)
 
You know, re - reading your post, that sounds a little like what happened to me after a bike accident I had a few years ago. I broke my collar bone, my shoulder blade and a bunch of ribs. Had to have an operation to straighten out my collar bone and put a pin into it to keep it in place while it healed. They did this while I was awake: they ran electric current through the nerves in and around the shoulder and the collar bone as an anaesthetic. It worked, in the sense that I didn't feel pain, but it left me with a numb spot in front of my shoulder.

That didn't impair the use of my arm, so that is very different from your case, obviously. However, there was certainly nerve damage because I had no sensation in that spot for a long time. It did, finally, heal completely, but it took a long time, at least a year.

So, some nerve damage will heal in the long run. I hope that's the case for you.
 
I think you might have grounds for a malpractice suit.
Talk to a lawyer.

--Mike L.
 
A small update:

I decided to stop taking the painkillers I was prescribed as I felt really 'tired' with them, and today I feel totally else. No, not that my arm has healed up, but I feel a lot happier now. Turns out that the painkillers had a serious side effect of making you feel depressed. I don't really understand how a medicine is able to do that to somebody's head, but thinking how I acted the last week and read this tread here, It looks like I almost turned EMO:D

So the advise for anybody that feels really depressed: stop that medication right away!:o


I think you might have grounds for a malpractice suit.
Talk to a lawyer.

--Mike L.
I know the surgeon definitely did a malpractice, and many doctors told me that, but at the same time they also told me It is very difficult to prove that to a court. The surgeon will say the nerve was damaged at my bike accident, and it will be very time consuming(if possible) to prove otherwise.

I've got friends studying lawyer-school and they also told me to try it, but honestly I feel like the surgeon has already stolen enough of my time, and I'm probably not going to waste any more with trying to take him down or getting money from it. My arm isn't going to heal from that. But I will make an official complain to make sure others are advised about the "qualities" of this surgeon before they decide to let him operate them.

Thanks again to all people who posted in this thread!
 
After the operations, doctors told me I would regain the full use of my right shoulder in about 6 months.

Thanks for taking the time reading this. As this is quite a big forum, I hope there are people here that can share some experience in situations like this.[/QUOTE]
----------------------------------------------------------------------------

My prayers for you. Being hit with your problem at an early age is surely
depressing. I was about 20 when my spine had a horrible trauma & I fought it & with medical help & exercise came out of it.

Keep a positive attitude & get more opinions. If you have a small impairment,a wise man said "It's not what happened but what you do with what happened to you !"

That's my motto.

Uncle Alan :thumbup:
 
Back
Top