SuperBen update

Fiddleback

Fiddleback

Knifemaker
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Knifemaker / Craftsman / Service Provider
Joined
Oct 19, 2005
Messages
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Well I'm mailing out my 2nd check to help Ben Ruppe today. You guys have given 3 knives and I have given two. I am amazed and inspired by your generosity. The first check to Helping Hands was $750 and was collected from the two knives I have donated and $30 from my daughter's lemonade stand as well. Today's check was $940 and came from three knives you folks have donated. I am very grateful for the help. Now that we are back in production, you can expect one knife to be sold off for Super Ben next Tuesday.

Becky sent me a note, and it was sweet, so I am copying it here:

You and those amazing good hearted people.

James and I are so blessed by everyone's support. Honestly I'm crying this morning already. We were told yesterday if his VEEG test shows something tomorrow, they are wanting to try a daily injection of some pretty harsh stuff. We dont want to do that. I believe in my heart that medical cann oil would have stopped his seizures just based on the report I'm getting from other parents who are there. We are limited for options, so if the infantile spasms don't stop soon we may split up our home between here and Colorado. I don't want him to have a mind of a 3 year old at 6. I want a good life for him.It makes me so angry that I'm even having to think of breaking up our home because of GA politics. Anyways, sorry to unload.

These funds are already helping soooo much. We just payed off two medical bills from when he was born and have been able to use the remainder of funds towards a better carseat that reclines when he has seizure. We also need a seizure monitor. We are probably going to purchase a heart and breathing monitor first, so if he stops breathing it will sound us, they are less expensive. The little chunker decided he wants to be a stomach sleeper and it it worries me to death that he will have a seizure face down. Then if there is some funds left we will put that towards our airfare to to try to get to Washington DC for The TSC Med Conf.


Please let everyone know how grateful we are for their generosity. This is truly making a difference in Bens life and ours.

Lots of Love,

Becky & James &
Ben
 
This is so hard to read. I can't even imagine what these parents are going through. We all need to be thankful to God each and every day for the health that He gives us. My family will be praying for Ben and his family!
 
It is so great of you to help this family Andy. I am so happy to have been able to help and hope to be able to continue to do so. God bless the little man...
 
lmari55 said:
This is so hard to read. I can't even imagine what these parents are going through. We all need to be thankful to God each and every day for the health that He gives us. My family will be praying for Ben and his family!
Click to expand...

Very well said, mirrors my thoughts exactly.

The people here in this forum just never cease to amaze and impress me.
 
Fiddleback said:
Well I'm mailing out my 2nd check to help Ben Ruppe today. You guys have given 3 knives and I have given two. I am amazed and inspired by your generosity. The first check to Helping Hands was $750 and was collected from the two knives I have donated and $30 from my daughter's lemonade stand as well. Today's check was $940 and came from three knives you folks have donated. I am very grateful for the help. Now that we are back in production, you can expect one knife to be sold off for Super Ben next Tuesday.

Becky sent me a note, and it was sweet, so I am copying it here:

You and those amazing good hearted people.

James and I are so blessed by everyone's support. Honestly I'm crying this morning already. We were told yesterday if his VEEG test shows something tomorrow, they are wanting to try a daily injection of some pretty harsh stuff. We dont want to do that. I believe in my heart that medical cann oil would have stopped his seizures just based on the report I'm getting from other parents who are there. We are limited for options, so if the infantile spasms don't stop soon we may split up our home between here and Colorado. I don't want him to have a mind of a 3 year old at 6. I want a good life for him.It makes me so angry that I'm even having to think of breaking up our home because of GA politics. Anyways, sorry to unload.

These funds are already helping soooo much. We just payed off two medical bills from when he was born and have been able to use the remainder of funds towards a better carseat that reclines when he has seizure. We also need a seizure monitor. We are probably going to purchase a heart and breathing monitor first, so if he stops breathing it will sound us, they are less expensive. The little chunker decided he wants to be a stomach sleeper and it it worries me to death that he will have a seizure face down. Then if there is some funds left we will put that towards our airfare to to try to get to Washington DC for The TSC Med Conf.


Please let everyone know how grateful we are for their generosity. This is truly making a difference in Bens life and ours.

Lots of Love,

Becky & James

Ben
Click to expand...
Pm sent Andy
 
It is fun to post pictures of our knife collections and it is very exciting to score the exact knife you want on Fiddleback Fridays. Those are good feelings, but they pale in comparison the great feeling you will have if you donate a knife to Ben and then read about the positive impact it had on the family. That is exciting and deeply moving. I imagine that the buyers of the Ben knives feel great to be part of it too.

Many of us here have been more blessed than we deserve. It is wonderful to share those blessings with others in their time of need. I encourage other established members of this sub-forum with significant collections to donate one to Ben's cause. It will warm you heart and vastly improve your smile.

I applaud esdunbar for jumping in today with his donation. That is very generous of you!

Thanks Andy for sharing Ben's story with us and also for your ongoing contributions to his needs.

Phil
 
Please use the Go Fund Me account to send small cash payments directly to Ben.

For more information on how you can show your support for Ben, please visit the gofundme page set up to raise money to help cover Ben’s Medical expenses:

http://www.gofundme.com/Bens-Fight-against-TSC

Also, the family has just launched a Facebook Page that will be updated regularly to track Ben’s progress and his Family’s journey with fighting TSC disorder:

https://m.facebook.com/HopeforSuperBen
 
crazy small world

i went to BLADE w/ my wife to give andy the EDCII i donated. i had briefly told her the story about what i was doing for a super cute little boy named ben on the way down there. well tonight i get her to come check out this thread and she knows james ruppe...i click on the facebook link posted above & sure enough .....my wife & james work for the same company...she knows him(james)


edit,
andy,
please tell them that kylie & phillip are pulling for superben
 
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That is very cool Vance.

Bartlax4, I have tried to reply to your pm all day yesterday and this morning with no luck. I will add your $50 gift to the next check. It is almost impossible for me to catch these folks, so please send cash gifts through the go fund me account.
 
Got ya, no worries. I do wonder how many PM's never even make it through when I don't hear from folks sometimes. In any case thanks for adding it to the next round and I will go through the fund me account for future. Thanks Andy.
 
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