Back from pain pump trial. I passed even if it was a rough one!

Joined
May 18, 1999
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Osiyo my friends!

I had to stay in the hospital an extra day because of complications I blame directly on the damned hospital beds.
Thursday my Dr. implanted the temporary catheter, didn’t know they went in nearly 14”-16”, and set the temporary pump at 0.5 micrograms a liter on – 0.5 mg/L- a continuous flow that didn’t control my pain all that well even though it was being supplemented with a lesser dose of my usual oral pain meds.

From “Home - Online Encyclopedia” http://en.mimi.hu/index.html
“micrograms per liter (mg/L) One microgram of a substance dissolved in each liter of water. This unit is equal to parts per billion (ppb) since one liter of water is equal in weight to one billion micrograms.
micron (MY-kron). A unit of length.”


When he came by Friday morning he gave orders to set the pump up to 0.7 mg/L and told me he wanted me up walking as much as possible so Barbie pushed the temporary pump and I pushed my rollator and we made the circuit around the hospital’s inside corridor three times, which didn’t seem all that far seeing as how we had walked a good ¾ mile at the zoo Wednesday, a week before the pain pump trial....

Saturday morning when I first woke up I was fine, actually the best I had been in a long time! I used my cane and pushed the pain pump into the bathroom to take care of morning necessities, washed my face and hands and made it back to the bed. I ate a bit of breakfast when it came about 8:00 a.m. (they are remodeling the hospital and the kitchen is down so all of the food is being catered in. I had three really decent meals all the time I was there, beef lasagna for lunch one day and baked salmon the next, and a chef salad Sunday just before I got to come home, sure wasn’t up to their usual wonderful fare!)
but then something happened, I don’t know whether I moved wrong or what but my pain level went to a steady 9 with frequent spikes to a level 10 and I think if I had access to a gun I would have ended it all right then and there in spite of my beliefs and how much I know it would hurt my family and friends it hurt so damned bad!

What made it really horrible was that my Dr. didn’t make it in until a bit after 1:00 p.m. so something could be done about the horrible pain! When he did make it in and saw me in that condition it didn’t take him long at all to order my pump upped to 1.0 mg/L and had the nurse draw me up a rather large dose of morphine to inject in my I.V. port. She had to put in a fifth of it at a time in order to keep from sending me over the edge into loopy land for which I was grateful. I don’t mind taking drugs for pain but I don’t like it at all when I get loopy!

But the helluvit was that even with such a large dose of morphine it hardly eased my pain at all. I didn’t know what to do! I tried setting up in the small recliner they have in the rooms hoping that would ease the pain some but didn’t. I got back in the damned hospital bed and centered myself enough that I could talk to my Barbie and ask her to bring up our firm foam pad that saved my arse when we had to sleep on the Army cots at the shelter for almost a week back in December which she agreed to do asap because she knew how bad off I was!

Shortly after she left I called for help to try and get me back in the recliner, which I forced myself to do. I figured maybe if I could move and stretch a little it might help me in the long run, which it did as I was able to regain a bit more movement than I had before even though it did hurt like hell, wasn’t any if much worse than laying in that hard hospital bed!
I sat there quite a while because I was still there when Barbie made it back with the foam pad that she and her sister immediately slid under my sheet.

Then my nurse came in bringing my supper tray that I refused the same as I had my lunch tray, just hurt to bad to eat or worry about eating. Then shortly after she brought in some more pills for me too take, seemed like they were always bringing me some damned pills. I asked her if I could have something for nausea and she told me I was probably nauseous because I hadn’t eaten anything so she brought me some soda crackers and a carton of pudding to take my pills with, some are so damned big I can’t get them down with just a liquid. So I ate a couple of crackers and about half the pudding and took the meds, went to the bathroom and then crawled back into bed.
The foam pad was heavenly, I told Barbie she didn’t need to hang around and watch me hurt and maybe sleep so she kissed me and told me she would see me in the morning and left.
After she left I prayed fervently that to either let me wake up as good as I had been when I came into the hospital or take me home!!!!

Sunday morning I woke up much, much, better and like usual when I feel good I over did things and used my cane and pushed my pain pump into the bathroom like I had been doing before I got so bad and had to use my rollator to get in there and back but it wasn’t too awfully bad, just hurt more than it would’ve had I of used my rollator.
It wasn’t long after that my Dr. came in and saw that I was very much improved and told me that the pain pump trial was a success! I told him that I was scheduled to come in the next Thursday, the 27th, to have it permanently installed and he told me that he was going to be out of town that day and to call and have it rescheduled.

I had to lay flat for 3 to 4 hours after having the catheter removed so I called Barbie and told her there wasn’t any use of coming up until noon because it would be after then that I could be released.
After coming home yesterday I was absolutely beat and layed down and slept until Barbie woke me for supper and shortly after I ate I layed down again. And today I’ve still been out of it and just got online a bit ago.
I’m really looking forward to having the pain pump put in permanently as I think my Dr. is going to increase the dosage a bit more than it was in the hospital and then I go in once a week for a couple of weeks at least to have it adjusted further up yet. My Dr. said I should be doing really well with it and I know if it’s better than it was Sunday it should be good indeed!

 
Wow!

I'm glad you passed but I'm sure sorry you went through that bit of hell.
 
Good job sticking it out there Yvsa! Sounds like a hellacious time, but you came through it in good shape is sounds like. I hope your times of great pain are in the past with this new pump system.

Please let us know how it goes. Glad to have you back! :thumbup:

Norm
 
It's kinda weird to feel sympathetic and congratulatory at the same time. :confused:

Good to see you posting sir! Thanks for the update, and stay on the upswing! :thumbup:
 
We've missed you Yvsa. I pray that you get full relief. You're in my thoughts daily my friend.
Steve
 
When you said "trial," you weren't kidding! Glad you made it through that experience. I hope everything goes well with the permanent installation. Continuing prayers sent.

Eric
 
Thats great news Yvsa! Keep us posted. Sorry the process was such a PITA though.
 
Man, I'm worn out just reading about it. I can't imagine actually going thru it. Your a tough old NDN Yvsa, God bless ya'. Glad your back and the trial was a success. Prayers continuing from Texas.
Terry
 
Yvsa: I'm really sorry to hear about the pain you were in, but I'm glad to hear that the pain pump is a good option. I'm impressed by your courage and spirit. Keep fighting!:thumbup:
 
I'm happy the trialwas a success;but it caused you such grief. Smoke and prayers continue from Texas.Al
 
Morphine....ah....well it was my best friend for a while after my motorcycle wreck. My leg was badly broken, but the most pain came from two fractured vertebrae and some cracked ribs.
Then I had some "interesting" hallucinations.
I saw a large mass of big black bugs crawling on the hospital room wall in front of my bed. I knew they weren't real, but my eyes saw them anyway.

Then there was the 8" diameter pink ameoba that floated along the wall for a while.

I finally got off the I.V. morphine and on to some "lesser" synthetic opiates, and finally down to ibuprofin.

Now (after 7 years) I am pretty much pain free, except for migraine headaches, which are another story altogether.

Yvsa, your story sure brought back some memories!

I really do feel for you, because I have been somewhere close to where you are.
I admire your courage and tenacity, elder bro.
I will be sending up smoke for you (and your Mrs.)

--Mike L.
 
Yvsa -Sorry to hear you had a rough time of it. I hope that the permanent pain pump will be an improvement. Sending up smoke.
 
Thanks Guys! As you may or may not have noticed I haven't been online much lately as I keep waiting for next Thursday at 3:30 p.m. I'm not sure if the pain is any worse since the trial or it just seems that way but whichever way it is lets say that I sure as hell notice it more.:eek: :(
And indeed I might be a tough old ndn or it could be just that I have harbored S&M tendencies all my life and never realized it. But I tend to believe the tough old ndn part as I sure as hell am not enjoying all this.:rolleyes: :D ;) Like I told the psychiatrist when I went for the required mental checkup to even take the trial, "If you get where you can't laugh about the pain and your situation you had just as well give up because you have already lost the battle." ;) :D
 
OK. I'll go back to prayer and beating YB.

Let me know when to stop. He's losing his sense of self sacrifice for a worthy cause. :)

YBhousesideevilintenteyes.jpg



Be well and safe.



Kis
enjoy every sandwich
 
Glad to hear you passed Yvsa. Sorry about all the pain to do it though. Hope you don't have to wait too long to get the pump permanently installed.

Prayers out :)

Alan
 
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