Granddaughter needs more smoke and prayers.

Done... Twelve years old. Damn. I hope she gets better soon Yvsa. Children are pretty tough. With the love and support of family around them, they can overcome much. Take care sir.
 
Sorry to hear the bad news. She and the family that supports her, will continue to be in my prayers.

bt
 
Yvsa,
I passed this request on to my favorite bunch of sheeple. They have Crohns in their family also. They will be joining me in sending a lot smoke.
 
Darn it all, Bro! You, your daughter, and now your grand-daughter.

Well, if that's what it takes, I've got some 18" long sticks about as thick as a cigarette that last at least an hour. Just have to light 'em and set them outside ( it's that or take the battery out of the smoke-alarm ).

Peace be with you all, and may things work out in a good way.
 
Yvsa, I've had Remicade. Administered by I.V over about a three hour period. Boring as heck...I just sat in the recliner and took a nap and read a book. Remicade worked wonders for me. shut down my flare in a day or two. I had no "flu like" symptoms. That is probably a result of an allergy to the mouse base. My doc had me take an Allegra before my appointment. They have come out with a human based product but it is currently approved for only Rhumatoid arthoritis.
Remicade is also expensive as hell...to the tune of about 2,000 per doseage for me. The amount given is calculated by weight.

There are other drugs out there that help with Chron's...purinethol, pentasa, dipentum.

Best wishes for your little one.
 
Yvsa, I can probably relate to a lot of what your family is going through. After a four month battle against a rare and aggressive form of leukemia, I lost my 11 month old daughter Zoë. She was born into my arms at our home, and she died in my arms at our home. In fact, I am overwhelmed as I write this to you. So I do share in your grief and in your family's suffering. You can believe that I am praying for your granddaughter, her mom, and the whole family.

And I'll agree with what has been said above: nothing is harder to understand or to accept than the suffering of a little child. This is still a mystery to me, and I ask God why many times each day. I saw the great suffering my daughter endured (more pain than I have ever had to endure in my whole life), and the fact that there was no remedy for her pain, and that I was totally helpless to ease her suffering, drove me almost to the point of madness. Despite all my prayers, and despite my whole-hearted belief that God was going to heal her, no healing ever came. Never the less, through Zoë's life and death He is doing a great work, and who am I, as His creation and his servant, to question Him or to accuse Him of unfairness? I will trust Him just as my daughter totally trusted me.

Your Friend,
Chris
http://www.shesmiles.com
 
Chris, your daughter was beautiful. I am so sorry for your loss. My son is 10 months old and I cannot fathom losing him. It could easily destroy me. Take care of yourself and your family.
 
Yvsa, I really feel for you. During my daughter's sickness, I felt helpless, and my most ambitious thought was to have her pain on myself instead of her.
I pray for Jessica, and all your family.
 
Thanks to everyone for the Smoke and Prayers!!!! I haven't any news yet, but Stella said she would keep me posted so as soon as I know anything I will post it. Hopefully the remicade will help, if not then we're surely gonna need a miracle, because the Dr said this was a last ditch effort.

Chris I'm sorry about the loss of your daughter. I can only begin to imagine what it's like to lose an innocent infant although I do know what it's like to lose a child.
Tommy was a young man when he was killed in a motorcycle accident. I will miss him always the same as my Barbie misses her son Lodie that was killed in a similar manner.
No one should ever have to lose a child no matter how old they are.:(
 
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