- Joined
- Mar 5, 1999
- Messages
- 34,096
After 6 months and $125,000 worth of tests, procedures, xrays, the medical community has finally arrived at a conclusion with reservations, of course, since some of the results are conflicting. But, given a reliability in the 95 to 99 percent range here's the story.
There are several problems but the major one is a cancer, a carcinoid, living in and eating away at my duodenum. It is a stage 2, about 1 inch, and seems not to have metastasized (spread). The standard treatment for this condition is surgery called a Whipple procedure which I have declined for the following reasons.
The Whipple is a very complex surgery. " portions of the upper gastrointestinal (GI) tract are removed. This includes the "head" of the pancreas, the attached duodenum, a portion of the common bile duct, the gallbladder, and sometimes a portion of the stomach." It takes 4 to 8 hours on the table (for me probably 12 hours), two weeks recovery in the hospital (for me probably a month) and at my age and in my condition will probably take 6 months recovery before I am half normal again. And it is expensive. My best guess is 1/2 million dollars.
With surgery omitted as an option this leaves radiation, chemotherapy, percutaneous ethanol injection and a couple of others. At present I'm leaning toward radiation but may change my mind before actual treatment begins.
The course of action for me is to now see an Oncologist and to determine which type of treatment is best.
The upside to all this is a carcinoid is a slow mover, not aggressive like the adenocarcinoma of the pancreas which they first told me I had. If I do nothing at all the worst case would probably be death by Christmas. The best case is I would still be fighting the cancer ten years from now. Same cases apply if treatment is successful or a failure.
My belief system tells me my death day was fixed with my first breath so I believe there is nothing anybody can do to change that. The reason I seek treatment is to try to improve the quality of life between now and my death day. The cancer causes some nasty effects which I'd like to get rid of or minimize.
Effectively I am still who I am but now fighting a cancer. The only life changes I'll make are those forced upon me.
Not the best news, not the worst. The Wheel of Life simply keeps rumbling on.
There are several problems but the major one is a cancer, a carcinoid, living in and eating away at my duodenum. It is a stage 2, about 1 inch, and seems not to have metastasized (spread). The standard treatment for this condition is surgery called a Whipple procedure which I have declined for the following reasons.
The Whipple is a very complex surgery. " portions of the upper gastrointestinal (GI) tract are removed. This includes the "head" of the pancreas, the attached duodenum, a portion of the common bile duct, the gallbladder, and sometimes a portion of the stomach." It takes 4 to 8 hours on the table (for me probably 12 hours), two weeks recovery in the hospital (for me probably a month) and at my age and in my condition will probably take 6 months recovery before I am half normal again. And it is expensive. My best guess is 1/2 million dollars.
With surgery omitted as an option this leaves radiation, chemotherapy, percutaneous ethanol injection and a couple of others. At present I'm leaning toward radiation but may change my mind before actual treatment begins.
The course of action for me is to now see an Oncologist and to determine which type of treatment is best.
The upside to all this is a carcinoid is a slow mover, not aggressive like the adenocarcinoma of the pancreas which they first told me I had. If I do nothing at all the worst case would probably be death by Christmas. The best case is I would still be fighting the cancer ten years from now. Same cases apply if treatment is successful or a failure.
My belief system tells me my death day was fixed with my first breath so I believe there is nothing anybody can do to change that. The reason I seek treatment is to try to improve the quality of life between now and my death day. The cancer causes some nasty effects which I'd like to get rid of or minimize.
Effectively I am still who I am but now fighting a cancer. The only life changes I'll make are those forced upon me.
Not the best news, not the worst. The Wheel of Life simply keeps rumbling on.