If it is ok with you I will send a link to this thread to some friends of ours.My wife had grew up with and gone to Church with them her whole life.Their daughter had a car accident a few months ago that sounds to me to be much like the situation you guys went through from what I know from reading your posts over the years.She is at the Patrica Neal center in Knoxville right now.
Link to her facebook page if you would like to take a look.
https://www.facebook.com/groups/180099752077077/
Sure, send it. Also add this.
Several years after the hit and run I had taken Kim back to the neurosurgeon (
not the doctor mentioned above).
Kim was still in a wheelchair at the time. We met in the hall the first physical therapist Kim had. This lady had seen her only in a vegetative state before, when she came in daily at the hospital and moved Kim's hands and legs around when Kim was totally limp, basically a dishrag, staring off into space. She was thrilled at Kim's progress. Then she told us that she could pretty accurately predict the patients who were going to make the best recoveries possible given their conditions.
They were the ones with strong, faith-based family support. My advice is to never, ever give up, and to pray a lot.
Doctors are great people, but they deal in norms, in expected outcomes given the evidence at hand. When Kim was lying inaminate, staring off into space somewhere, I would put my hand in front of her eyes and slowly open and close it, and hour or more each day. Then one day, as I did this, I thought I saw her hands twitch, attempting to do the same. The twitches began to syncronize over time with my motions. The doctors and nurses cautioned me against excitement, "merely coincidental muscle twitches." One day I moved my thumb only, and she began to twitch her thumb, and I knew that they were wrong. From then on, I listened to their advice, but went my own way. Later on, speech therapists dismissed her from further treatment, saying she was making no progress and further treatment would be unethical. They pushed us to equip her with a speech synthesizer, that spoke typed words. I refused, telling them that someday that might be necessary, but that for the near future I wanted her trying to speak. When she and I were alone in the car, we would have "yell practice" to develop her breathing and control. I would make up phrases with tricky transitions for her to try to repeat. She now can carry on a telephone conversation. We made up repetitive physical movements that I would have her do while I remained in a catching position. My objective was to place repetitive demands on her brain until it developed new pathways. When it happened, it was always suddenly. One day she couldn't do something, and the next day she could. If none of this had worked, if she was still lying there today, at least I would have the consolation of knowing I had done all that I had the capability of doing. I stll wonder if God was amused by my efforts,
saying,"I'll do the healing, but let's let him think he is helping." Nonetheless, I couldn't do nothing.
I know a young lady with brain damage similar to Kim's who made a short-term, complete recovery. I also know one with similar injuries who has been lying in a vegetative state for several years, with a very prayerful, supportive mother. Then there is Kim, who apparently will always have limitations. However, God has his purposes and there are all kinds of miracles.
Trust.