Latest update on granddaughter Jessica.

Thanks everyone for the continued Smoke and accompaning Prayers. It is most appreciated!
I'm assuming once again that no news is good news as I haven't heard from Stella today.
I called her yesterday and woke her up and I don't want to do that again if I can help it.
I sometimes forget that Stella is terminally ill herself with inoperable liver cancer with the way she keeps going with Jessica and all but the fact is still there according to the Drs diagnosis.:grumpy:
It's a good thing the chemo has at least slowed down its development so Stella can administer too Jessica when she needs it the most.
A strange thing too be thankful for but Stella and I are both thankful for it.
I know it's inevitable that I will have to go and attend a funeral one of these days but I don't want it too be anywhere near soon and never is too soon for me.
A man shouldn't have to bury his kids, his kids ought too have too bury him.:grumpy:
Losing one child was enough to last this old man a lifetime!:(
 
BTW - tell Barb the 4" basket she made for me is used daily. Continues to be used daily!

The top shelf holds an abalone shell whose heavy lip I drilled most of the way though to hold a stick of incense. There is some rising from it now. The shelf below has packs of incense and Barb's basket. It holds the lighter I use to start the incense.

Kind of appropriate isn't it?
 
Well after getting a pretty good update yesterday I get this one today.:( :grumpy:
Seems like it's one damned thing after another with this kid!!!!:grumpy:

Well better say some more prayers cause now she has a blood infection...cant break the fever and they are putting her on Vancomycin to stop it.....I swear if there is a way for her to worry me more she will find a way......But it isnt her fault that her body is being bad.....we had a good day yesterday but today is a bad day with the fever and such and I am having a bad time with the doctors.....But life goes on.....say a few prayers that she gets over this and comes home....I knew it was going to be a longer stay but I was hoping it would be shorter......Tell Mom Barb I said HI and that I miss you both.......

Love
Baby Girl
 
I wanna help somehow. :(

Prayers, etc. don't seem enough. Be gentle with yourself, Friend.
 
Severe suffering by children seems so contrary to how things should be in life. :( Having good thoughts for her.
 
This just isn't right - but it is a fact. I will continue to pray things work out in a good way.

The feeling of being helplessness and hopelessness is hard to bear alone. But then you needn't do that. If I could I wish I could just hug you and sit quietly next to you, but I can't. So I'll do the next best thing I know to do: send smoke and my thoughts and prayers with them.
 
yvsa,
my old cowboy prayers are coming your way and will keep coming--i hope so much she is ok

your friend
 
yvsa,
if you ever need a friend to talk to--you can call me anytime--i know first hand how times like this are hard--e-mail me anytime and i will give you my number
 
I'm sorry, Old Son.


I'll pray too. We fight and we just don't know.
She really must be a fighter to make it this far.

Prayers from all in the munk house tonight.




munk
 
She's in my thoughts, Yvsa. Children should be oblivious to such pain. I'll pray for her, but will also take comfort in the fact that when she beats this monster, there will be nothing she will not be able to tackle. I'll try to find some good smoke to send up for her tonight.


Jake
 
Steely_Gunz said:
I'll pray for her, but will also take comfort in the fact that when she beats this monster, there will be nothing she will not be able to tackle.

Jake
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Thanks everyone. What is extra sad is that Jessica only knows she is sick a lot of the time. She probably understands that she has a bad disease but that's probably the extent of her knowledge.
Jessica is what a lot of people call a "slow child." Jessica has ADD, ADHD, and several other initial type things that means she is always going to have to be under the care of someone, a guardian of some sort so to speak.
I doubt Jessica will ever be able to live alone as she just doesn't understand many things about life and what it takes too live.
Like I said at the beginning of all this, "If Jessica makes it through it is going to be a miracle."
I feel like it's been a miracle that she has made it this far.:(

You all help more than you know. I'm really having a hard time dealing with all of this.
I can't even begin to imagine how my daughter feels.:(
 
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