They just don't make em like they used to

Joined
Jan 8, 2017
Messages
503
Just a little short story to kick off the morning. I'm mid 30s, ex-military, have lots of good friends that I still keep in touch with from my time in the service. That said, I've never quite been one to spend too much time with people my age. Being raised mostly by my grandmother I think I just took more to her generation. As I sit here today I have two best friends, 1 is 74 going on 35 and the other is 76 going on 40. Both these "old men" run circles around most people my age, let alone folks their age. Now I'm lucky in that one is a neighbor so I get to see him daily. The other lives across town and we only get to spend maybe 10-15 days a year together. Today is going to be the first time this year I'll get to see my good buddy who is 76 and it comes at a time 2 days after a funeral for one of his friends who was in his 90s and just passed. We don't have much for plans, we're going to go get some breakfast at a local greasy spoon and sit around and shoot the bull till the gun shop opens then walk around in there for a bit and probably call it a day.

So this is a cheers to all you "old fellas" who may not be as good as you once were, but are as good once as you ever were. Age in reality is just a number, but I sure wish there were a lot more people my age who have the same attitude and willingness to teach and share with others as people of your generation. Just want you fellas to know that those relationships you guys have with younger fellas, family or not are just as important to people on my end of the deal as they probably are to you guys. And to all you younger fellas out there, don't take these older fellas for granted. We never know how much time any of us has, but their odds are slightly slimmer than ours so make sure you cherish the time you do get to spend with your older friends. In closing, cheers to you older fellas and thanks for being great mentors to people of my generation.

If anybody else has any stories of older or younger friends, feel free to share. I'll check back in later when I'm full of greasy taters and hopefully for my wallet not "something I couldn't live without".
 
Hope you enjoyed your meal with your friend. I know what you mean about being friends with some of the old-timers! One of my best friends is/was my former teacher/mentor and a WWII vet. We don't communicate much now as his health status has changed and it is difficult for him--also he lives on the other coast. The other person I speak with most often is in her 80's. I know several people in their 80's who still work full-time and have very active lives--putting some of the younger guys to shame--and IMO do a better job!

The interesting thing is that although my friend and I share the same basic career, that is something we never talked about. We would spend hours and hours together and never get bored and never talk about anything work-related, or even related to our field.

I find that many of my younger friends don't have the time or energy to maintain such a good friendship, and they are interested in things that I simply don't care much about.

And they don't make em like they used to--not just people either. There are many things that have gone out of fashion that I still enjoy. In fact, if I enjoy it, I can be sure it will go out of style!
 
Well was hoping for a little more participation, but alas, I hope people at least enjoyed my story time. As to lunch and fellowship the day was amazing. There was just one SMALL little problem. There has been a certain gun I have been looking to try to get for 4 months and I have called every two weeks religiously for 4 months. They always had "just sold their last one". Today when I went in I casually asked if they had one and told me they got 3 in Monday and had put them on the shelf. So we go check the shelf and I sigh a sigh of relief as they have all bet bought. "Oh but wait, let me check the back to make sure we put them all out." And out he walks with a box and at that point I know I'm totally screwed.

Keep in mind, literally every single gun I own has a purpose, I have a bird shotgun, home defense pump action, .270 deer rifle, .35 REM Brush gun....etc.

There is one gun that I have been wanting for a long time, my "grail" if you will, and the funny thing is it's not terribly expensive for what it is.

8500.jpg


Yup, Ruger AR-556, essentially the Para 2 of "assault rifles". Luckily I got it for about $200 below MSRP. Still doesn't mean it didn't hurt.

Well boys and girls, we went from an appreciation thread to a gun thread, have at it.
 
The Community Center forms generally are not heavily visited, but you posted in the right spot. Friends are hard to come by. Enjoy them.
 
I dont have friends. I realized after all these years that its because im boring and half miserable. Good story. Thanks for sharing
 
Great story, thanks for sharing. My grandad was my best friend until he passed three and a half years ago, so I can completely relate. I loved spending time with him, asking him questions, and hearing his stories. He spent a lot of time in the service as well.

Oh, and I just picked up the Colt variant of your little beauty above. Nice score!
 
Oh, and I just picked up the Colt variant of your little beauty above. Nice score!

Well ironically what I'm not is a carbine enthusiast. In fact I don't honestly have much reason to own one other then for the fun and variety of something a little different. I know I'll never take a shot at anything on 4 legs with it as I have better tools equipped for that job. Now all that said for an entry level model with the Ruger name on it and the homerun reviews this gun has gotten since it has been released, it kind of became my grail as I said. The colts look amazing and I can truly appreciate them for what they are, just in the same way that somebody who is a carbine enthusiast could appreciate my .270 for what it is.


I'm glad you got to spend so much quality time with your grandfather and really learned from him. I wouldn't trade the lessons and raising I had from my grandmother for anything, but having adult male role models even as an adult is something I truly enjoy.
 
Great post. I have an uncle who is a Vietnam Veteran and has seen some sh#t. Growing up, he was that uncle that would always be the spark at any family event; he would end up drinking too much and do some zany thing. We all knew that he was affected from his time in Nam but he would never talk about it.
I recently seperated from the Army. At the first family get together, my uncle comes up to me and hands me one of his beers. In my 40 yrs, he had never done this before. He sits down and asks about my time in Afghanistan. After telling him some of my stories, he proceeds to tell me some of his from Nam. I figured he had been through some stuff but had NO idea how bad it was for him.
Yea, we bonded and I am extremely thankful for him.

As far as gun stuff; I love Rugers and especially revolvers. I am looking forward to an 8-shot revolver that Ruger is coming out with this year. Chambered in 44, should be interesting.
Also, there is some brand new manufacturer that is coming out with a new 9mm platform. Normally I would not care but they are supposed to be located in Texas so I might have to check them out.

You should always support your local firearm and knife makers!
 
When I was in the military, the "old salts" were always the go-to folks. No nonsense, willing to teach, good humored.

When I got out and went to work on the docks, I worked with these 3 guys who were 20 years my senior.

I switched jobs later, and lo and behold was on a crew with these 3 guys who were 20 + years my senior.

I'm still best of friends with all of them save a couple who've passed away, and they are my go-to folks. No nonsense, willing to teach, good humored.

They don't make 'em like they used to is as true as it gets.

We still arrange the occasional breakfast together, and there's no better way to spend a morning.
 
Excellent post, and great topic for a thread. I'm going through a difficult time in my life (dying from terminal cancer, and not doing well at all financially with prospects for everything just getting worse), and really wish I had solid friendships. Part of this is my fault, I reckon: maybe I'm a bit of a horse's rearend, and maybe I didn't put in enough effort to making friends. However, when I did put in effort, I was always shot down, with no reason / justification. People have, without exception, over the course of my life apparently just grown tired of me or something, because they all dropped me as a friend - no matter how I helped them. I've had people borrow and never return things and money; steal clients and intellectual property after I gave them their start; treat me like crap after I got them started in a new career, paid them well, shared my hard-earned knowledge with them...and the pattern apparently continues.

When I was diagnosed in July '15, a supposed friend of mine, whom I knew online only because she lives in the UK, reached out to me and told me she wanted to fly over and visit for a week. I was delighted; she stayed for a week, we had a great time. Communication when she went back home was a bit spotty, but not bad. She flew over to visit again in the Spring of '16, this time spending two weeks with my wife and I. I had been trying to sell a heavily customized, very low mileage crotch rocket; the best offer I could get was so low it wasn't worth it. So I arranged to give that motorcycle to her husband.

She flew back home in May of '15. I had told her about my failures with friendship; she assured me she loved me, that she would never do that; likewise, she promised to take my sled dog team when I died, and to do anything else to help me during this time.

Well, she stopped talking to me in June of '16. I sent her dozens of messages, with no reply. Finally, at the end of November, she dropped me a note and said that it was all her fault, but she wanted to be my friend. I explained that given the fact I was dying, we would have to work on rebuilding trust. Especially with my dog pack; I was not going to arrange to give her $20,000.00 and have the dogs flown over to her kennel. For all I know, she might take one look at the dogs and decide that they were too much of a reminder of me, and decide she couldn't care for them.

She didn't reply for 6 weeks; when she did, she told me that all this was my fault. I was an 4$$. I caused this rift. She was no longer going to take any initiative, and she didn't care about me. If I wanted to be her friend, I could reach out to her. In other words, the famous old ultimatum was delivered. I was tempted to ask her how her husband liked the motorcycle, which has USD20,000 worth of modifications for the racetrack. But I bit my tongue.

That pretty much made me take a long, hard look at everybody who was calling me a friend; I suddenly realized that the majority of these people didn't care about me at all, but they were acting out of some sense of guilt. There was a guy who promised to help me in any way; mind you, I'd known him for 20 years in a professional setting, and he never had the time of day for me. I asked him for some specific help; he would invite himself over to my house, but he never helped me. He always wanted to talk about his mental health. I realized he didn't really want to be my friend, but his sense of guilt was driving him hard.

Long story short: I have no real friends. There's nobody I can call at 2 in the morning to help me with a problem, even if it is just to talk. The only person in my life is my wife - and our marriage has seen better days. What I'm going through, since I was the breadwinner, is terribly devastating to us and her. I'll die alone; I've pretty much decided that I can't stand any more rejection given my current emotional state dealing with losing my job, my truck, my life savings, and my life. If I do sustain more rejection, I'm going for the final hike in the woods, and test out the cutting capability of the K2 against the soft tissue and cartilage of the throat.

You are a lucky man. To have even one good friend is excellent; to have two good friends is something miraculous. Keep living however you live; treasure those friends.

Stay strong,

BobW
 
Hey RLDubbya,

I think that is where they got the expression: a friend in need is a friend in deed (indeed).

I'm sorry you are having such a rough time, and I wanted to share my observation: many, many people are only friends when they need something or they think you can do something for them. This is not my being pessimistic or paranoid: I've seen this over and over and over again in family and work situations. It's the only logical explanation for why people keep calling or stop calling (when nothing else has happened). For example, when my friend held a high-level job and was in a position to do things for others (hire them, refer them, etc.), certain people called all the time. As soon as he left that job, they stopped calling.

I remember inviting someone to dinner, and he actually asked me what I wanted. I said to eat dinner with him and his wife, and he meant what was my ulterior motive. Very sad.

In other words, in many cases the phone won't ring unless the caller is asking for something or needs something. I don't know if it's human nature, if things have always been this way...but not very nice and appalling in some cases how some people can run hot and cold. Good luck--if there is such a thing.
 
I can say this, I know many many many many people. My wife and I own a veterinarian clinic so of coarse we have tons of people who want to be friends. As you mentioned RLDubbya, there are very few people regardless of age who are true to the end friends.

I've got a little story for you about my next door neighbor best friend. Towards the beginning of last year he was beginning to get a little bit too short with me at times. This is all very shortly after his best friend of 40 years passed and he was progressively getting more and more short tempered. We would be doing something or screwing around and next thing you know I'm getting yelled at like a child. Now we're good friends so of coarse an hour or so later we're good to go and everything is okay. It was getting to a point though where it was really taking a toll on me. So a day after he yelled at me for something really really stupid I sat down and wrote him a letter. I explained to him what he was doing and even brought up our age difference. If we were supposed to be real friends, I explained that friends didn't treat friends that way and he would have never treated his friend whop just passed that way. I told him how much I understood the frustration and emotions of his loss and how it still affected him, but I also told him that if he couldn't find a more effective way to channel that frustration, that I was willing to step away from our friendship. I also told him that if my letter angered him and he wanted to step away from our friendship, that I was willing to risk that too.

Turns out he read the letter then turned and handed it to his wife. She read it and looked at him and said, "Every damn word in here is true and you've just been an ass to people recently and you need to get your shit together."

I don't know much more about what was said and he and I have never spoken about the letter again. All I do know is we were sitting around a neighborhood fire a few nights later, having some beers and he just walks up to me and looks at me and says, "Hey buddy, I just want you to know we're good." From that day forward I can honestly say our friendship is better and healthier then it has ever been. I've literally not been yelled at a single time. I screw up when we are doing things and he is much more understanding about mistakes and is much better about his reactions.

I guess the whole point of my story, friendship goes two ways. You have said yourself you may have treated people kind of poorly on your end at times even though at others you were overly generous. As evidence by your post you're still here and none of us ever know what today or tomorrow will bring. The only advice I can really give you from my experience is don't automatically give up on everybody and at the same time give yourself a good hard look and ask yourself if you are treating people how you would want to be treated, 100% of the time. We're men, we suck at talking. Luckily I was raised by a woman, so I am able to sit down and have conversations with my wife to keep our marriage healthy. Everybody has marital problems, but being able to actually talk about them is extremely important. Just because you're a "man", don't let yourself be too much of a man to express some emotion from time to time.

You have terminal cancer and you deal with everyday knowing it could be your last. I see you even have a blog about how you spend your days. I haven't checked it out, but I would ask this question. Do you spend as much time talking to those close to you about your feelings on things as you do writing them down and sharing them with the world? You may or may not, I honestly do not know, but if you do, that could be a good place to start.

Good luck with your journey, and please axe the end it all talk. Even on the internet I have seen cops at houses for comments like those on forums. Keep fighting buddy and stay positive.
 
I've never had too many close friends. Now that I'm a little higher mileage and looking back, I think it's 'cuz I got kicked around as a kid (emotionally/socially, not physically). I guess maybe as a result of that I try to be polite and friendly to folks, and say sorry when I screw things up. (I say sorry a lot.)

So, without many close comrades to bare me up in times of burden, I've found the thing that lifts me out of the mud best is to show simple acts of kindness to others, in hopes their burdens might be lessened, if only by a bit.

I'm not sure why I'm bringing this up, other than this thread made me think of it.

RLDubbya, your blog is good. I know someone who might benefit from reading it. I'll share it with her.
 
I can say this, I know many many many many people. My wife and I own a veterinarian clinic so of coarse we have tons of people who want to be friends. As you mentioned RLDubbya, there are very few people regardless of age who are true to the end friends.

I've got a little story for you about my next door neighbor best friend. Towards the beginning of last year he was beginning to get a little bit too short with me at times. This is all very shortly after his best friend of 40 years passed and he was progressively getting more and more short tempered. We would be doing something or screwing around and next thing you know I'm getting yelled at like a child. Now we're good friends so of coarse an hour or so later we're good to go and everything is okay. It was getting to a point though where it was really taking a toll on me. So a day after he yelled at me for something really really stupid I sat down and wrote him a letter. I explained to him what he was doing and even brought up our age difference. If we were supposed to be real friends, I explained that friends didn't treat friends that way and he would have never treated his friend whop just passed that way. I told him how much I understood the frustration and emotions of his loss and how it still affected him, but I also told him that if he couldn't find a more effective way to channel that frustration, that I was willing to step away from our friendship. I also told him that if my letter angered him and he wanted to step away from our friendship, that I was willing to risk that too.

Turns out he read the letter then turned and handed it to his wife. She read it and looked at him and said, "Every damn word in here is true and you've just been an ass to people recently and you need to get your shit together."

I don't know much more about what was said and he and I have never spoken about the letter again. All I do know is we were sitting around a neighborhood fire a few nights later, having some beers and he just walks up to me and looks at me and says, "Hey buddy, I just want you to know we're good." From that day forward I can honestly say our friendship is better and healthier then it has ever been. I've literally not been yelled at a single time. I screw up when we are doing things and he is much more understanding about mistakes and is much better about his reactions.

I guess the whole point of my story, friendship goes two ways. You have said yourself you may have treated people kind of poorly on your end at times even though at others you were overly generous. As evidence by your post you're still here and none of us ever know what today or tomorrow will bring. The only advice I can really give you from my experience is don't automatically give up on everybody and at the same time give yourself a good hard look and ask yourself if you are treating people how you would want to be treated, 100% of the time. We're men, we suck at talking. Luckily I was raised by a woman, so I am able to sit down and have conversations with my wife to keep our marriage healthy. Everybody has marital problems, but being able to actually talk about them is extremely important. Just because you're a "man", don't let yourself be too much of a man to express some emotion from time to time.

You have terminal cancer and you deal with everyday knowing it could be your last. I see you even have a blog about how you spend your days. I haven't checked it out, but I would ask this question. Do you spend as much time talking to those close to you about your feelings on things as you do writing them down and sharing them with the world? You may or may not, I honestly do not know, but if you do, that could be a good place to start.

Good luck with your journey, and please axe the end it all talk. Even on the internet I have seen cops at houses for comments like those on forums. Keep fighting buddy and stay positive.

Amoo,

I'm actually a very positive guy - I would ask of you that you don't judge me from one post. I'm not pissed or anything, just being straightforward, as I do appreciate your straightforwardness and the words you have written. Thank you for those.

I'm also not certain that I agree that any of this is my fault - I'm always, always, however, more than willing to accept responsibility that I might have blinders on to certain behaviors. But I have spent many, many hundreds of hours thinking all this through. Outside of one period in my life, in the mid-80s when my world fell apart and I became addicted to drugs, I've been quite good to people.

There's not necessarily a logical explanation; however, there is a psychological explanation at play. I'm in palliative care, and meet with psychs periodically. The one thing that they have told me about my situation is that I need to get used to it - they have found that terminal cancer patients, and only terminal cancer patients, experience nearly all their friends suddenly dropping away for no clear reason. The current psych theory is that it is tied to a fear of mortality; not the patient's mortality, but rather the friends' individual mortalities. This fits nicely with some behaviors I've seen from the one guy I mentioned knowing in a professional setting: whenever we got together, I realized that the conversations always became about him, his psychological state, his emotional state, his failing marriage, his strained partnership with other owners of the business. He never was willing to talk about my needs. If I brought a need up (for example, I brought up things ranging from helping me shovel snow to being one of the people on the list to answer any questions about my end of life desires), he found a way to immediately dismiss my need and steer the conversation back to his worries about his wife's approach to the marriage, or how he feels he can't really open up to his therapist.

Anyhow: I do my best to be positive. I work quite hard at that, actually: you have to in my shoes. In fact, one of my current projects is to put together a raffle to benefit the MPN Research Foundation. I've also had to take nearly full responsibility for understanding the nature of my cancer and the organic damage which it has caused - the last hematologist told us, back in April, that I should just go home and die, because there was no chance that I could live for a month with everything wrong with me, and he had no idea where to begin with treatment. I have spent hundreds, if not thousands, of hours researching the hematopoietic process humans, what goes wrong with this cancer, and how best to fight it. This summer, I put together my own treatment protocol, using a combination of drugs used for other purposes as well as very experimental drugs that can only be purchased for research lab purposes. My treatment actually had decent success: the hepatologist / GI specialist told me that never, in his 20 years of practice, had he seen a case of esophageal varices healing so completely as to appear that they never existed. My red blood cell counts jumped by 2 full points; my spleen shrank, visibly. I suspect that my liver has improved (if I wasn't terminal, I would be placed on the transplant list), and the hepatologist has finally agreed to order an ultrasound and full biopsy to check.

I have also, along the way, helped many other patients who are having difficulty in understanding their bloodwork; their hematologist's recommendations; and other lab results. They send a copy of their medical records to me, and we spend up to 3 hours on the phone reviewing them and getting them to a point of comfort in their understanding of their situation.

Hardly, I think, the values of somebody who is negative.

Finally: I apologize if I offended you with my offhand comment about death and the end of life. The cops are welcome to stop by at any point; since my township cannot afford fulltime police protection, I'd be quite angered as a citizen that they were wasting their time on me, and would make sure that the trustees were made fully aware of it.
 
There's not necessarily a logical explanation; however, there is a psychological explanation at play. I'm in palliative care, and meet with psychs periodically. The one thing that they have told me about my situation is that I need to get used to it - they have found that terminal cancer patients, and only terminal cancer patients, experience nearly all their friends suddenly dropping away for no clear reason. The current psych theory is that it is tied to a fear of mortality; not the patient's mortality, but rather the friends' individual mortalities. This fits nicely with some behaviors I've seen from the one guy I mentioned knowing in a professional setting: whenever we got together, I realized that the conversations always became about him, his psychological state, his emotional state, his failing marriage, his strained partnership with other owners of the business. He never was willing to talk about my needs. If I brought a need up (for example, I brought up things ranging from helping me shovel snow to being one of the people on the list to answer any questions about my end of life desires), he found a way to immediately dismiss my need and steer the conversation back to his worries about his wife's approach to the marriage, or how he feels he can't really open up to his therapist.

Yes. This has the ring of truth and was where I didn't want to go with my comments. I agree, being ill (as you describe) puts a whole different face on things when talking about availability of friends.

And it really does sound like you are trying everything known and unknown to help yourself and stay positive! Bravo! I genuinely admire that kind of creativity (maybe because it reminds me of how I cope with intractable problems.:))
 
I've never had too many close friends. Now that I'm a little higher mileage and looking back, I think it's 'cuz I got kicked around as a kid (emotionally/socially, not physically). I guess maybe as a result of that I try to be polite and friendly to folks, and say sorry when I screw things up. (I say sorry a lot.)

So, without many close comrades to bare me up in times of burden, I've found the thing that lifts me out of the mud best is to show simple acts of kindness to others, in hopes their burdens might be lessened, if only by a bit.

I'm not sure why I'm bringing this up, other than this thread made me think of it.

RLDubbya, your blog is good. I know someone who might benefit from reading it. I'll share it with her.

Thanks. My blog has two major points: to share with myelofibrosis (and other MPN cancer) patients and their families some of the things to expect, from aspects of the disease, to how to read bloodwork results; this includes the emotional turmoil that every single one of us finds ourselves in - having been involved with leading support groups for the disease, I can say with 100% surety that every patient (and their family) goes through this emotional turmoil. The second point, or reason for being: as expressive writing, my blog gives me a place to gain power over my emotions. If I can articulate them in words, they lose a great deal of their power over me. I know of a few other MF patients who have kept a blog for the same reason. Other patients, less disposed to wordsmithing, default to art therapy, group therapy, etc. The worst thing a patient can do is to simply take drugs to help them deal - drugs are OK to help overcome a specific bad emotional state, and to use them briefly is fine. But to commit to using Xanax, or whatever, for just a general aid, is not so OK.

IMHO, YMMV, and all that. I'm not a doctor, nor a therapist. I think we've well established that I'm just some butthole on the Internet; a classification with which I have no argument whatsoever.
 
Yes. This has the ring of truth and was where I didn't want to go with my comments. I agree, being ill (as you describe) puts a whole different face on things when talking about availability of friends.

And it really does sound like you are trying everything known and unknown to help yourself and stay positive! Bravo! I genuinely admire that kind of creativity (maybe because it reminds me of how I cope with intractable problems.:))

Thanks - I am still a work in progress. I'm actually glad this thread was started, we're talking about stuff that guys rarely discuss.

Question, and please don't be offended: why didn't you want to go to a certain place with your comments? I'm truly curious, but don't want to make you feel uncomfortable in any way, so feel free to ignore the question as you wish.
 
Thanks - I am still a work in progress. I'm actually glad this thread was started, we're talking about stuff that guys rarely discuss.

Question, and please don't be offended: why didn't you want to go to a certain place with your comments? I'm truly curious, but don't want to make you feel uncomfortable in any way, so feel free to ignore the question as you wish.

Not a problem--no offense taken. My thinking was that I don't know you personally, where you've been, what you've experienced, and it might be presumptuous to extrapolate in that direction. I figured the fickleness and self-centeredness of human nature were fair game ;)--and not a far step from the reality of friendships under the stress/strain of a demanding illness or disability.

Thanks for the reminder we are all works in progress, too! and btw, I 100% support your comments about the Xanax. I know someone famous for saying "patients come to me with a Xanax problem" when what they had initially was an insomnia or anxiety problem--the Xanax addiction being much more painful/difficult to treat.
 
Last edited:
Amoo,

I'm actually a very positive guy - I would ask of you that you don't judge me from one post. I'm not pissed or anything, just being straightforward, as I do appreciate your straightforwardness and the words you have written. Thank you for those.

I'm also not certain that I agree that any of this is my fault - I'm always, always, however, more than willing to accept responsibility that I might have blinders on to certain behaviors. But I have spent many, many hundreds of hours thinking all this through. Outside of one period in my life, in the mid-80s when my world fell apart and I became addicted to drugs, I've been quite good to people.

There's not necessarily a logical explanation; however, there is a psychological explanation at play. I'm in palliative care, and meet with psychs periodically. The one thing that they have told me about my situation is that I need to get used to it - they have found that terminal cancer patients, and only terminal cancer patients, experience nearly all their friends suddenly dropping away for no clear reason. The current psych theory is that it is tied to a fear of mortality; not the patient's mortality, but rather the friends' individual mortalities. This fits nicely with some behaviors I've seen from the one guy I mentioned knowing in a professional setting: whenever we got together, I realized that the conversations always became about him, his psychological state, his emotional state, his failing marriage, his strained partnership with other owners of the business. He never was willing to talk about my needs. If I brought a need up (for example, I brought up things ranging from helping me shovel snow to being one of the people on the list to answer any questions about my end of life desires), he found a way to immediately dismiss my need and steer the conversation back to his worries about his wife's approach to the marriage, or how he feels he can't really open up to his therapist.

Anyhow: I do my best to be positive. I work quite hard at that, actually: you have to in my shoes. In fact, one of my current projects is to put together a raffle to benefit the MPN Research Foundation. I've also had to take nearly full responsibility for understanding the nature of my cancer and the organic damage which it has caused - the last hematologist told us, back in April, that I should just go home and die, because there was no chance that I could live for a month with everything wrong with me, and he had no idea where to begin with treatment. I have spent hundreds, if not thousands, of hours researching the hematopoietic process humans, what goes wrong with this cancer, and how best to fight it. This summer, I put together my own treatment protocol, using a combination of drugs used for other purposes as well as very experimental drugs that can only be purchased for research lab purposes. My treatment actually had decent success: the hepatologist / GI specialist told me that never, in his 20 years of practice, had he seen a case of esophageal varices healing so completely as to appear that they never existed. My red blood cell counts jumped by 2 full points; my spleen shrank, visibly. I suspect that my liver has improved (if I wasn't terminal, I would be placed on the transplant list), and the hepatologist has finally agreed to order an ultrasound and full biopsy to check.

I have also, along the way, helped many other patients who are having difficulty in understanding their bloodwork; their hematologist's recommendations; and other lab results. They send a copy of their medical records to me, and we spend up to 3 hours on the phone reviewing them and getting them to a point of comfort in their understanding of their situation.

Hardly, I think, the values of somebody who is negative.

Finally: I apologize if I offended you with my offhand comment about death and the end of life. The cops are welcome to stop by at any point; since my township cannot afford fulltime police protection, I'd be quite angered as a citizen that they were wasting their time on me, and would make sure that the trustees were made fully aware of it.

I just started reading this as I go to sit down and eat dinner and I will type out a much more thoughtful reply later. Please be aware though that I wasn't necessarily implying any part of it was your fault, nor so I think anything negatively about you what-so-ever, I was simply offering it as something to look at. Like I said, I'll add much more later, but if I offended you or if you think I meant you necessarily were the problem, then I am the one to apologize as that was not my intnetion.

EDIT, also fear not, I'm not personally planning on calling the law any time soon, I was just letting you know I HAVE seen that happen from people posting things on forums as I moderated forums for a long time as a side job and at some places we were required to report those things.
 
Ok kinda rushed through that because I wanted to get back to this. Was good though, bacon wrapped pork with asparagus and mashed pots.

So for starters when I read through your post I actually came away feeling you were pretty honest and forthright person, which is why I took the liberty to respond in such a way which some could deem offensive. I actually respect that very much in people when they are willing and able to speak calmly and truthfully about their emotions. You even took the time to note that you did realize you may have caused some friction in a few relationships and I found that pretty insightful. Please do note though that I did say "stay positive" not try to be positive. I'm probably much like you in the sense that I'm kind of an emotions on my sleeve kinda guy, so when I write or say something it is usually exactly what popped in my head. I get in trouble when I try to sugar coat things and I learned that a long time ago.

I can also tell you that withdrawing from those you are close to when they are reaching their end is real. My grandmother forever and will always have been my best friend and mentor. She had terminal liver failure among a host of other things, even went into a coma 3 different times, but kept waking up much to the doubt and surprise of the doctors who were simply stunned that he liver would magically suddenly kick in, drain her body of toxins and the next day she would be awake as if nothing happened. I finally lost my grandmother towards the end of 2016 and it was honestly a lot easier on me then I thought, but there is one very very very important reason why. The last time I went to see her was about 4 months before she passed (she was living 3 hours away in an assisted living facility). She spent so much of her life sacrificing to help my mom and the rest of my family that she raised me to always protect my own emotions first. As I left I let her know that this was the last time I would be coming and she looked at me and smiled and told me she was surprised I came this time and totally understood as I was doing exactly what she taught me. Keep in mind she went through Cancer 2 times, back surgeries where she would "never walk again" and did...etc. She ran the full gambit the last 10-12 years of her life and I was always there for her as she was for me while I was growing and maturing. So the emotional response of pulling away isn't always simply because people worry about their own mortality, but it is also a coping mechanism as you probably already know. I had to mentally prepare myself that she would no longer be here.

I personally have a ton of respect for people who keep fighting and stay positive until the very end, because that's what I watched happen and unfold before my very eyes. Besides I have my own host of problems, 35 and have already had heart surgery, still suffer from SVT along with PTSD and high anxiety....etc. So I certainly don't feel I'm in a place to judge other people, as I was raised to understand that no matter your situation somebody out there always has it worse then you. So as I said originally, keep fighting and stay positive, you never really know around which corner IRL or on the internet where you'll find a friend. :)
 
Back
Top