OT: Unsettling Phone Call (update Pg.3)

I had an appointment with the neurologist on Thursday and I was going to post an update, but I didn't want to bring down anyone's mood for the Ganza and it turns out, I'm glad I didn't.

The neurologist left me more upset that I already had been. He was being very elusive... it seemed the only things he wanted to do was verify that, yes, I had been having seizures and not "feinting episodes" and tell me that he legally had to submit paperwork to the DMV recommending they take my license. I asked him about the EEG and he told me he'd put in the consult and they'd contact me about setting that up.

I tried to ask him about what they had seen on the MRI and he said he wasn't a surgeon and he didn't want to step on their feet. When I pressed him, he said that they were angeomas, or something like that, and that they may or may not be tumors.

I found out my appointment with neurosurgery isn't until April 23rd and at first I was relieved, if they didn't need to see me right away it must not be serious, right? The I pressed the scheduling office and they told me that it's a very bust clinic and their first appointment isn't until then.

My primary Doc's nurse called me yesterday and I conveyed to her that was I was going to think I had brain tumors for the next two months and asked if she might be able to get a little more info on it. She spoke with the Doc and said that, the way it was explained to her, is that they're either enlarged or extra blood vessels and that she was surprised they wanted to see me at all, that they'll probably just do yearly MRIs to make sure they don't change.

So, I kinda feel a little better...

Again, thanks for the support you guys (and gals ;) ). I usually try to get through everything by myself and it's amazing how much it helps to talk it out, let alone how great it feels to know that (almost) total strangers have your back, so to speak.
 
well it seems to be pretty good news then, I would also think if it were super serious they'd want you in ASAP. The doctors always like a follow up consult visit after having MRI's and such done, though it doesn't help ease the minds of us that have to wait for the appointment. I find personally that the nurse explains things better and usually empathizes enough to give an answer. Keeping my fingers crossed for you Dan!
 
I'm glad the news isn't too bad. I have rarely gone to the doctor and had extremely clear results.
 
That seems to be good news bro. Glad to hear it. Hopefully time flys for you and april comes quickly. Until then you will remain in my thoughts and prayers.

Garth
 
Just FYI - A great percentage of the population never, ever, goes for a brain MRI & so many many people may have a various assorted brain abnormality like small blood vessel disease that never causes them any physical or mental problems and nobody including their Doctor ever even knows that it exists.

So I wouldn't be thinking that you are up for any brain surgery or anything but, it would now be S.O.P. for you to get periodically checked out as a matter of routine for verification that a now known existing issue (even a minor one) is not getting any worse.
 
Thoughts and prayers for ya Bro. Not the time or place to talk about my escapades over the last few years of Phd.s, scans, tests and health bending drug trials. But have faith and know we are here to listen to anything you need to share. When this is over, we should be able to laugh and share survival stories.
 
I'm in on this one a bit late, but i'm glad to hear that it's not worst case scenario. I really hope it all turns out to be nothing. Best wishes sir. Keep us up to date
 
Best wishes for your future results. The brain is nothing to mess with. Prayers still being sent your way.
 
DB82, Brother it is a wonderful to here the news. I personally know real well the fear that that comes with Doctor's offices and the scheduling of test and simply the NOT KNOWING. You will continue to get our prayers and smoke Bro. One thing I believe in now far more than I use to and I really believe that the support of friends and family can help a person endure challenges and come out a-ok.

Russ & Amie
 
That is great news! As RussMo said, the worst is not knowing. I hope everything turns out alright in the end. You are my thoughts and prayers! :thumbup:
 
Thanks everyone. I finally got my EEG appointment near the end of the month, either the 21st or 23rd, so hopefully we'll get a little closer to finding out why these seizures starting happening. I'm adjusting to the medication a little more, I still don't like it, but it's better than seizures...

MMIAM (funny, I've been reading your posts for years and thought your name was mymindisabomb until I broke it down for the acronym), I hope your doing well. I like experimental things and new technologies, just not when it has to do with doctors and medical treatments...

Thanks Bullcarver, I think the doctors had been trying to tell me that, but they couldn't explain it to me in a way I could understand.

I've been doing a lot of thinking and, while still present, my fears of brain tumors are greatly diminished. What Bullcarver said makes a lot of sense to me, if anything I'm probably just in the middle of evolving a bigger brain :D Maybe there is some other kind of damage from the car crash they couldn't see on the MRI they'll be able to see with the EEG...? That's what I'm hoping and it's enough to keep my mind somewhat tempered.
 
Thanks Bullcarver, I think the doctors had been trying to tell me that, but they couldn't explain it to me in a way I could understand.

I've been doing a lot of thinking and, while still present, my fears of brain tumors are greatly diminished. What Bullcarver said makes a lot of sense to me, if anything I'm probably just in the middle of evolving a bigger brain :D Maybe there is some other kind of damage from the car crash they couldn't see on the MRI they'll be able to see with the EEG...? That's what I'm hoping and it's enough to keep my mind somewhat tempered.

Congratulations brother...

...take it as a close call anyway and enjoy every day a little more...

I hope they didn´t suspend drinking...because I strongly suggest you to celebrate.
 
Thanks everyone. I finally got my EEG appointment near the end of the month, either the 21st or 23rd, so hopefully we'll get a little closer to finding out why these seizures starting happening. I'm adjusting to the medication a little more, I still don't like it, but it's better than seizures...

MMIAM (funny, I've been reading your posts for years and thought your name was mymindisabomb until I broke it down for the acronym), I hope your doing well. I like experimental things and new technologies, just not when it has to do with doctors and medical treatments...

Thanks Bullcarver, I think the doctors had been trying to tell me that, but they couldn't explain it to me in a way I could understand.

I've been doing a lot of thinking and, while still present, my fears of brain tumors are greatly diminished. What Bullcarver said makes a lot of sense to me, if anything I'm probably just in the middle of evolving a bigger brain :D Maybe there is some other kind of damage from the car crash they couldn't see on the MRI they'll be able to see with the EEG...? That's what I'm hoping and it's enough to keep my mind somewhat tempered.
So glad to read things are a little more settled, positive and informed. :thumbup:
BTW, it could have been "bomb". My story is of wasted potential, violence and self indulgence reined in a bit too late. I am not a fan of medical trials and such either. I grew up with it and am much too tired of it. Anyhow, way TMI about me. You keep the faith my friend. We (amongst many others I am sure) are glad to have you around and feeling a bit brighter about your prospects.:thumbup::thumbup:
 
Had my EEG done yesterday. The technician said they'd read the tests today and post them, whatever that means, next week.

I had cut down on the seizure medication because it was making me feel... bad... and the auras started coming back today. I'm going to have to head in as soon as possible to get my medication changed, I feel better not taking as much, but the auras coming back is all bad.

Thanks again you guys, I would be going nuts if I had to deal with this all in my head...
 
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