Random Thought Thread

[jlauffer]

Good juju and vibes sent B Burke ! Hope she makes a full recovery!

 

[Casinostocks]

Thank you for sharing Burke. It gives one pause to reflect on the fragility of life and how experiences like yours could really happen to any one of us, and our loves ones, quite out of the blue at any given time. You're a good man, father and husband. Wishing your wife, you, your children and family strength and fortitude in confronting life's challenges.

 

[Cap’n Smudge]

I’ve debated sharing this a couple of times but I consider some of you almost like friends and this is such a supportive group in general I really appreciate the atmosphere so I’m going to.

Near the end of May my wife was diagnosed with Guillain Barre Syndrome which is an autoimmune disease in which your immune system attacks your peripheral nervous system causing progressive paralysis starting in your extremities and progressing inwards. In my wife’s case she had a severe enough case it caused her stop breathing on her own and she had to be placed on a ventilator, intubated, and eventually get a tracheostomy and feeding tube. She was in the ICU for a full month and finally got out a few days ago and moved to a respiratory acute care unit. She is starting to be able to breathe with less support but is still mostly paralyzed and will have to move to an inpatient hospital rehab for a few months and likely to another less acute rehab after that. It’s unlikely she’ll be home this summer, possible this fall, possibly even early next year but the good news is she has a pretty good prognosis for eventually making a full recovery. I’m still working more or less full time on top of being dad to our kids and her husband and medical proxy, going in to see her every other day, so I’m stretched pretty thin these days. It’s hard but family and friends have stepped up to help in an incredible way and I am grateful for that.

Sorry to hear this B Burke .
My brother had GBS. Spent some time in the hospital getting plasmapheresis. His recovery was full and fairly rapid (a couple months). His case was caught pretty early, but I’m hoping for a similar outcome for your wife.

 

[yoko]

I’ve debated sharing this a couple of times but I consider some of you almost like friends and this is such a supportive group in general I really appreciate the atmosphere so I’m going to.

Near the end of May my wife was diagnosed with Guillain Barre Syndrome which is an autoimmune disease in which your immune system attacks your peripheral nervous system causing progressive paralysis starting in your extremities and progressing inwards. In my wife’s case she had a severe enough case it caused her stop breathing on her own and she had to be placed on a ventilator, intubated, and eventually get a tracheostomy and feeding tube. She was in the ICU for a full month and finally got out a few days ago and moved to a respiratory acute care unit. She is starting to be able to breathe with less support but is still mostly paralyzed and will have to move to an inpatient hospital rehab for a few months and likely to another less acute rehab after that. It’s unlikely she’ll be home this summer, possible this fall, possibly even early next year but the good news is she has a pretty good prognosis for eventually making a full recovery. I’m still working more or less full time on top of being dad to our kids and her husband and medical proxy, going in to see her every other day, so I’m stretched pretty thin these days. It’s hard but family and friends have stepped up to help in an incredible way and I am grateful for that.

My friend I'm sending all the positive energy I can your family's way

At this point in my life I realize how quickly things can change in our small bubble

 

[JJ_Colt45]

Thoughts and prayers for you B Burke , your wife, and family.

 

[Big DJ]

I’ve debated sharing this a couple of times but I consider some of you almost like friends and this is such a supportive group in general I really appreciate the atmosphere so I’m going to.

Near the end of May my wife was diagnosed with Guillain Barre Syndrome which is an autoimmune disease in which your immune system attacks your peripheral nervous system causing progressive paralysis starting in your extremities and progressing inwards. In my wife’s case she had a severe enough case it caused her stop breathing on her own and she had to be placed on a ventilator, intubated, and eventually get a tracheostomy and feeding tube. She was in the ICU for a full month and finally got out a few days ago and moved to a respiratory acute care unit. She is starting to be able to breathe with less support but is still mostly paralyzed and will have to move to an inpatient hospital rehab for a few months and likely to another less acute rehab after that. It’s unlikely she’ll be home this summer, possible this fall, possibly even early next year but the good news is she has a pretty good prognosis for eventually making a full recovery. I’m still working more or less full time on top of being dad to our kids and her husband and medical proxy, going in to see her every other day, so I’m stretched pretty thin these days. It’s hard but family and friends have stepped up to help in an incredible way and I am grateful for that

Good luck and all the best to you and yours.

 

[Retired UPS Driver]

I’ve debated sharing this a couple of times but I consider some of you almost like friends and this is such a supportive group in general I really appreciate the atmosphere so I’m going to.

Near the end of May my wife was diagnosed with Guillain Barre Syndrome which is an autoimmune disease in which your immune system attacks your peripheral nervous system causing progressive paralysis starting in your extremities and progressing inwards. In my wife’s case she had a severe enough case it caused her stop breathing on her own and she had to be placed on a ventilator, intubated, and eventually get a tracheostomy and feeding tube. She was in the ICU for a full month and finally got out a few days ago and moved to a respiratory acute care unit. She is starting to be able to breathe with less support but is still mostly paralyzed and will have to move to an inpatient hospital rehab for a few months and likely to another less acute rehab after that. It’s unlikely she’ll be home this summer, possible this fall, possibly even early next year but the good news is she has a pretty good prognosis for eventually making a full recovery. I’m still working more or less full time on top of being dad to our kids and her husband and medical proxy, going in to see her every other day, so I’m stretched pretty thin these days. It’s hard but family and friends have stepped up to help in an incredible way and I am grateful for that.

My prayers are with you, your wife, and children B Burke , may she make a full recovery and get back home with you.

 

[Burke]

Wow. Sorry to hear that, but I'm glad the prognosis is positive. Hope she makes a speedy and full recovery.

I don't really know what the appropriate thing to say is, B Burke , so I'll just say I hope your wife makes a full recovery and that you can once again resume happy, fulfilling lives.

You'll be in my thoughts.

Thinking about you and your wife B Burke .

Now I feel like a jackass coming here to brag about my new mattress.

Please remember to try to take care of yourself, Sir. Life can be incredibly challenging and unpredictable. My thoughts are with you and your family.

Good juju and vibes sent B Burke ! Hope she makes a full recovery!

Thank you for sharing Burke. It gives one pause to reflect on the fragility of life and how experiences like yours could really happen to any one of us, and our loves ones, quite out of the blue at any given time. You're a good man, father and husband. Wishing your wife, you, your children and family strength and fortitude in confronting life's challenges.

Sorry to hear this B Burke .
My brother had GBS. Spent some time in the hospital getting plasmapheresis. His recovery was full and fairly rapid (a couple months). His case was caught pretty early, but I’m hoping for a similar outcome for your wife.

My friend I'm sending all the positive energy I can your family's way

At this point in my life I realize how quickly things can change in our small bubble

Thoughts and prayers for you B Burke , your wife, and family.

Thank you guys so much. Cap’n Smudge I’m glad to hear your brother had a relatively rapid and successful recovery. In my wife’s case they did catch it really early (so that’s a plus) but it was a really really severe case (a minus), on the other hand Boston has some of the best hospitals in the entire world especially for neurological issues, so I think she is getting truly world-class treatment (a big plus).

It really did happen out of the blue - she went from a little tingling in her hands to being sedated and intubated a few days later. I am doing my best to take care of the kids first, her second, and work third. It doesn’t leave a ton of time for me but I am starting to settle into a routine that I hope will be sustainable at least for the next few months.

 

[KnifeVice]

B Burke I’ll be praying for your wife and family. I hope she heals quickly and fully and in the end this brings your family even closer together. Hang in there.

 

[Mendoman]

Here’s a sweet blacked out boat with some motorized parachute things in the background. It looked like the could have been filming a new Jomes Bond movie out there today.

 

[carnifex knifeworks]

I’ve debated sharing this a couple of times but I consider some of you almost like friends and this is such a supportive group in general I really appreciate the atmosphere so I’m going to.

Near the end of May my wife was diagnosed with Guillain Barre Syndrome which is an autoimmune disease in which your immune system attacks your peripheral nervous system causing progressive paralysis starting in your extremities and progressing inwards. In my wife’s case she had a severe enough case it caused her stop breathing on her own and she had to be placed on a ventilator, intubated, and eventually get a tracheostomy and feeding tube. She was in the ICU for a full month and finally got out a few days ago and moved to a respiratory acute care unit. She is starting to be able to breathe with less support but is still mostly paralyzed and will have to move to an inpatient hospital rehab for a few months and likely to another less acute rehab after that. It’s unlikely she’ll be home this summer, possible this fall, possibly even early next year but the good news is she has a pretty good prognosis for eventually making a full recovery. I’m still working more or less full time on top of being dad to our kids and her husband and medical proxy, going in to see her every other day, so I’m stretched pretty thin these days. It’s hard but family and friends have stepped up to help in an incredible way and I am grateful for that.

You and your family will be in our prayers. That sounds very difficult. I'm glad to hear you have real world support around you.
Remember to take time to care for yourself so you can care for your loved ones. I hope the best for you and your family.

 

[AusLoX]

Why do we press harder on a remote control when we know the batteries are dead? Fuk

 

[Organic556]

I’ve debated sharing this a couple of times but I consider some of you almost like friends and this is such a supportive group in general I really appreciate the atmosphere so I’m going to.

Near the end of May my wife was diagnosed with Guillain Barre Syndrome which is an autoimmune disease in which your immune system attacks your peripheral nervous system causing progressive paralysis starting in your extremities and progressing inwards. In my wife’s case she had a severe enough case it caused her stop breathing on her own and she had to be placed on a ventilator, intubated, and eventually get a tracheostomy and feeding tube. She was in the ICU for a full month and finally got out a few days ago and moved to a respiratory acute care unit. She is starting to be able to breathe with less support but is still mostly paralyzed and will have to move to an inpatient hospital rehab for a few months and likely to another less acute rehab after that. It’s unlikely she’ll be home this summer, possible this fall, possibly even early next year but the good news is she has a pretty good prognosis for eventually making a full recovery. I’m still working more or less full time on top of being dad to our kids and her husband and medical proxy, going in to see her every other day, so I’m stretched pretty thin these days. It’s hard but family and friends have stepped up to help in an incredible way and I am grateful for that.

I’m sorry for what you and your family are going through brother. I truly hope she makes a full recovery soon. Stay positive for your family. Sometimes that can make all the difference, especially for the kids to see. I’m glad she is in good hands as well.

 

[AusLoX]

Also, Why do we drive on parkways and park on driveways?

 

[DocJekl]

I’ve debated sharing this a couple of times but I consider some of you almost like friends and this is such a supportive group in general I really appreciate the atmosphere so I’m going to.

Near the end of May my wife was diagnosed with Guillain Barre Syndrome which is an autoimmune disease in which your immune system attacks your peripheral nervous system causing progressive paralysis starting in your extremities and progressing inwards. In my wife’s case she had a severe enough case it caused her stop breathing on her own and she had to be placed on a ventilator, intubated, and eventually get a tracheostomy and feeding tube. She was in the ICU for a full month and finally got out a few days ago and moved to a respiratory acute care unit. She is starting to be able to breathe with less support but is still mostly paralyzed and will have to move to an inpatient hospital rehab for a few months and likely to another less acute rehab after that. It’s unlikely she’ll be home this summer, possible this fall, possibly even early next year but the good news is she has a pretty good prognosis for eventually making a full recovery. I’m still working more or less full time on top of being dad to our kids and her husband and medical proxy, going in to see her every other day, so I’m stretched pretty thin these days. It’s hard but family and friends have stepped up to help in an incredible way and I am grateful for that.

Praying for a full and speedy recovery. With Guillain Barre Syndrome, all of my patients had a positive outcome in the end. Most patients will be walking bin within the year, maybe even 6 months, although it can take much longer to get full strength back. You're doing a great job supporting your family, and you should be proud!

 

[beeinak]

I’ve debated sharing this a couple of times but I consider some of you almost like friends and this is such a supportive group in general I really appreciate the atmosphere so I’m going to.

Near the end of May my wife was diagnosed with Guillain Barre Syndrome which is an autoimmune disease in which your immune system attacks your peripheral nervous system causing progressive paralysis starting in your extremities and progressing inwards. In my wife’s case she had a severe enough case it caused her stop breathing on her own and she had to be placed on a ventilator, intubated, and eventually get a tracheostomy and feeding tube. She was in the ICU for a full month and finally got out a few days ago and moved to a respiratory acute care unit. She is starting to be able to breathe with less support but is still mostly paralyzed and will have to move to an inpatient hospital rehab for a few months and likely to another less acute rehab after that. It’s unlikely she’ll be home this summer, possible this fall, possibly even early next year but the good news is she has a pretty good prognosis for eventually making a full recovery. I’m still working more or less full time on top of being dad to our kids and her husband and medical proxy, going in to see her every other day, so I’m stretched pretty thin these days. It’s hard but family and friends have stepped up to help in an incredible way and I am grateful for that.

GB is simply bizarre! I took care of quite a few patients with it in the ICU, and as DocJekl mentioned- they generally do well if caught early. It is still scary as hell for the patient to be intubated (drugs are great for amnesia effect), and terrifying for loved ones. Waiting and feeling helpless is very hard, so realize your limitations and lean on those around you. Let the medical folks do what they do, look after your kids, make sure to eat for fuel, and remember that it affects all of you. Kids can get very depressed or angry simply because they feel lost/scared/upset. Take the time to cry in the shower, be strong when you need to be, let the kids express themselves.
Y’all will get through this and in very short order will be feeling quite different. Hang tough, and if you need to vent- don’t hesitate!

 

[Lorien]

this forum is obviously a great place to find support for some of life's more visceral troubles, (and the silly troubles as well, lol) and I think you busted the right move in sharing your story here. If it helps make you feel a little less alone, a little less stressed, and/or a little less desperate, then you absolutely made the right call!

I've learned, (I'd like to say over the course of my life but really it's been over the past few years) that we get back what we put out there, and having friends who'll help us cope, who help us over the bumps even when we're being shitty, (I'm talking about you, Nathan) but especially when we need a little support, is something that helps get us back on track.

All the best, Burke! You got this.

 

[AusLoX]

Why isn’t there mouse-flavored cat food?

 

[Burke]

My prayers are with you, your wife, and children B Burke , may she make a full recovery and get back home with you.

Thank you!

B Burke I’ll be praying for your wife and family. I hope she heals quickly and fully and in the end this brings your family even closer together. Hang in there.

That is my hope too!

You and your family will be in our prayers. That sounds very difficult. I'm glad to hear you have real world support around you.
Remember to take time to care for yourself so you can care for your loved ones. I hope the best for you and your family.

Thank you, I am doing my best and so grateful for all the family and friends who have stepped up to help with meals, donations, offering to pick up / hang out with the kids etc.

I’m sorry for what you and your family are going through brother. I truly hope she makes a full recovery soon. Stay positive for your family. Sometimes that can make all the difference, especially for the kids to see. I’m glad she is in good hands as well.

I really appreciate that….I do my best to keep it together for the kids even when I am upset and they are a great source of strength for me too.

Praying for a full and speedy recovery. With Guillain Barre Syndrome, all of my patients had a positive outcome in the end. Most patients will be walking bin within the year, maybe even 6 months, although it can take much longer to get full strength back. You're doing a great job supporting your family, and you should be proud!

Yeah I am hoping it’s shorter but understand the timelines around nerve regrowth and limitations there.

GB is simply bizarre! I took care of quite a few patients with it in the ICU, and as DocJekl mentioned- they generally do well if caught early. It is still scary as hell for the patient to be intubated (drugs are great for amnesia effect), and terrifying for loved ones. Waiting and feeling helpless is very hard, so realize your limitations and lean on those around you. Let the medical folks do what they do, look after your kids, make sure to eat for fuel, and remember that it affects all of you. Kids can get very depressed or angry simply because they feel lost/scared/upset. Take the time to cry in the shower, be strong when you need to be, let the kids express themselves.
Y’all will get through this and in very short order will be feeling quite different. Hang tough, and if you need to vent- don’t hesitate!

Yes for sure I told my wife she was “lucky” she got to basically fast-forward about three weeks that I had to live through.

The kids have been AMAZING. My two older boys are from a previous marriage and they’ve been seeing a therapist since they were little just to give them a space to talk through questions or problems with all that stuff and she has been great about helping with this too. My youngest is doing an incredible job of handling things for a 6 year old. He definitely misses mom and has been a little more clingy with me but he’s cooperative, he doesn’t just act out to push buttons (something he for sure has done in the past!) and he’s been good about being clear what he doesn’t want to talk about and asking questions about what he does. A bunch of people have told me that our parenting really shows through in how the kids are doing and that’s awesome to hear.

this forum is obviously a great place to find support for some of life's more visceral troubles, (and the silly troubles as well, lol) and I think you busted the right move in sharing your story here. If it helps make you feel a little less alone, a little less stressed, and/or a little less desperate, then you absolutely made the right call!

I've learned, (I'd like to say over the course of my life but really it's been over the past few years) that we get back what we put out there, and having friends who'll help us cope, who help us over the bumps even when we're being shitty, (I'm talking about you, Nathan) but especially when we need a little support, is something that helps get us back on track.

All the best, Burke! You got this.

Thank you guys. I appreciate the support from everyone!

Why isn’t there mouse-flavored cat food?

Maybe mouse just tastes like chicken so chicken-flavored cat food is actually mouse-flavored cat food.

 

[madcap_magician]

Why isn’t there mouse-flavored cat food?

Tight demand in the headhunting field for tasters who are experts in mouse flavors, sadly.